Well, everything went great! The "Community Liaison" (an RN) was wonderful and knew just what to say to my husband (her cousin had ALS, so she was very familiar with the disease)! The meeting lasted almost 3 hours and when she left I could think of nothing that had been left out. It was "my" choice as to how often they would come out: 3 or 5 times a week. I told her 3 to start off, as I didn't want my husband to freak.
I walked her to her car when she left. She gave me a hug and told me I should use every service their agency provides for as often as they will provide it, because I was going to need it.
A nurse and aide will be coming tomorrow. We will iron out a schedule, I think.
I should have done this long ago, as the things we and this RN saw as problems would've been resolved easily had he been on hospice. No running from this practitioner to that practitioner, still to have problems unresolved.
I would encourage signing on with hospice for any pALS that require help with Activities of Daily Living.
I walked her to her car when she left. She gave me a hug and told me I should use every service their agency provides for as often as they will provide it, because I was going to need it.
A nurse and aide will be coming tomorrow. We will iron out a schedule, I think.
I should have done this long ago, as the things we and this RN saw as problems would've been resolved easily had he been on hospice. No running from this practitioner to that practitioner, still to have problems unresolved.
I would encourage signing on with hospice for any pALS that require help with Activities of Daily Living.
