joy2024
New member
- Joined
- Jan 29, 2014
- Messages
- 3
- Reason
- Other
- Country
- GER
- State
- Dortmund
- City
- Dortmund
Hey there, I'm a 25 year old girl. It looks like my granny had ALS back then and I show some unnormalities. I also asked in other forums and groups but some things seem not to be the normal ALS onset so I wanna know if maybe anyone else had the same symptoms. Well my journey started 2 yrs ago after a herpes infection, I was pretty unfit and in the last too yrs I showed every now and then nervepain in my left arm just for 1-2 days. After that I had a lot of problems with my stomach.
Well last year November I had pretty much the feeling my neck was very hard plus I had the feeling their is pressure behind my eyes. Went to the hospital and they said my eyes are totally fine and the blood too expect of my heartmuscle enzym it was slightly higher.( got a tooth out that day)
The real problems started short after Christmas, I had pain in both upper arms, a friend tried to crank my spine in, first felt pretty good but one day later I had like twiching everywhere, burning down both arms and so on. The next day I had the feelings their was a knife in my spine... But the symptoms last.
I want to the hospital again, they made eeg, MRI from my brain, reflexes with the hammer, evoked potentials ( visual, audio and somatic) and told me it wont be ALS.
At the moment I still can do a lot of stuff like gymnastic stuff but I recognized sometimes the muscles feel ok after doing a lot and sometimes I have days in which they feel weak after not even doing a bit. Today I feel like getting a cold, little bit pressure when I breath. Plus because of the symmetrical atrophies I have ulinaris nerve pain.
Last blood test my neutrophiles were slightly over normal.
The questions I have is. Did anyone experienced such a symmetrical onset?! It's like I lost on my whole body somewhat muscles?
Can it be normal that u have better and worse days for example walking?!
Well last year November I had pretty much the feeling my neck was very hard plus I had the feeling their is pressure behind my eyes. Went to the hospital and they said my eyes are totally fine and the blood too expect of my heartmuscle enzym it was slightly higher.( got a tooth out that day)
The real problems started short after Christmas, I had pain in both upper arms, a friend tried to crank my spine in, first felt pretty good but one day later I had like twiching everywhere, burning down both arms and so on. The next day I had the feelings their was a knife in my spine... But the symptoms last.
I want to the hospital again, they made eeg, MRI from my brain, reflexes with the hammer, evoked potentials ( visual, audio and somatic) and told me it wont be ALS.
At the moment I still can do a lot of stuff like gymnastic stuff but I recognized sometimes the muscles feel ok after doing a lot and sometimes I have days in which they feel weak after not even doing a bit. Today I feel like getting a cold, little bit pressure when I breath. Plus because of the symmetrical atrophies I have ulinaris nerve pain.
Last blood test my neutrophiles were slightly over normal.
The questions I have is. Did anyone experienced such a symmetrical onset?! It's like I lost on my whole body somewhat muscles?
Can it be normal that u have better and worse days for example walking?!