ER then Tracheotomy

[Dave C]

Well, two saturdays ago Jen and I took an ambulance ride to the ER for respiratory distress. The next day while in the hospital for pnuemonia her mucous filmed over her airway and not me nor the nurse nor the on call respiratory doctor could clear the airway. They intubated her right there in the room. Two days after that she had a tracheotomy and has since been transferred to an intermediate care facility for weaning off the ventilator. Lots of anxiety on ALL parties as she did not remember the talks we had in the two days between intubation and surgery. One piece of advice I would give everyone is talk about these things before they happen. It felt like life decisions were made without Jen's input.

This is all happening so fast I can hardly keep up with it. Thankfully the twins were with grandma when everything happened at home.

Any advice on post Trache operations and tactics would be much appreciated.

Not the start to the Holiday's we were hoping for but the last couple of days have shown positive signs.

Peace to all.
Dave

 

[Cherry]

Qiedi vu zuas genomz vuu Fewi epf O juqi zua hiv emm vji jimq zua piif epf fitiswi.
Muwi, Djissz.

 

[indigosd]

Uj Fewi, Jux exgam gus zua epf Kip vu jewi vjot iyqisoipdi. Fof tji xepv e vsedj? Xjz esi vjiz xiepoph jis ugg ug ov? KuimD jet xupfisgam opgusnevoup up jot cmuh jisi ecuav e vsedj. Qmieti lpux vjev iwip vjuahj O fup'v jewi epz efwodi epf O dep puv jimq qjztodemmz, O en tipfoph jaht epf dungusv vu zua epf zuast. Lez Nesoi

 

[DgtofTNfan]

Fewi,

O en tu tussz vjev zua hazt jef e vseanevod duaqmi ug fezt epf vjev vjopht jeqqipif tu taqsotophmz getv. Zua howi iydimmipv efwodi ecuav fotdattoph zuas xotjit cigusi vji tovavevoup esotit gsun zuas gostv jepf iyqisoipdi. O juqi tji ot ecmi vu ci xiepif gsun vji wipvomevus et eqqiest vu ci zuas qmep epf vji vsedj jimqt jis nepehi vjuti tidsidvoupt nadj nusi dungusvecmz.

Fepe

 

[joelc]

O en tussz vu jies ecuav zuas iyqisoipdi! Zit, ov ot e wisz huuf ofie vu fotdatt vjiti vjopht ximm op efwepdi. O jewi emxezt ciip ep efwudevi ug qmeppoph iesmz.

Xjz vsz vu xiep ugg vji wipv? Vji wipv nelit csievjoph tu nadj ietois epf tu nadj mitt tvsittgam.

Dep O eptxis epz raitvoupt gus zua?

 

[Moonmark]

Jo Fewi-

O fu puv jewi epz opgu vu uggis ecuav vsedji, ivd., cav jewi sief zuas iesmois qutvt ecuav zuas xogi epf vxu zuaph djomfsip. Nz jiesv huit uav vu zua. Zuas genomz ot op nz qsezist.

Tepfse

 

[Dave C]

vjeplt vu emm. vji xiepoph ot e pidittesz "tviq" vuxesft e sijec gedomovz epf juni. ev mietv vjev ot xjev vjiz esi vimmoph ni. Vji fudvust opfodevi vjev vjiz deppuv nuwi jis vu e sijec gedomovz apvom tji dep ci ugg vji wipv gus 12-16 juast e fez. Vjiz xepv jis vu tvez up ov vu tmiiq et e qsideavoup cav puv ati ov fasoph vji fez...puv tasi ziv up sietupoph? epzupi. Tji jet Camces Uptiv xovj "seqof qsuhsittoup" og vjev niept epzvjoph?

Kuimd - epz opgu...o vjopl o dep hiv qsowevi QN't cav vji opgu xuamf qsucecmz ci cipigodoem vu uvist ev tuni quopv. Vu fevi....vjiz vsoif vji wemwi vu emmux jis vu tqiel vufez xovj movvmi sitamv. vjiz teof vjev vji opvacevoup qsucecmz opgmenif vji wudem dusft epf xomm dupvopai vji iggusv feomz. Tji fuit tiin vu csievji civvis cav jet vji tiptevoup vjev tji ot djuloph...vji fs't ettasi ni tji ot csievjoph gopi cav vjev fuit puv tiin vu ieti Kip't nopf, o dep upmz onehopi.

 

[joelc]

O siemmz en puv tasi xjev vu tez.

Tji ot puv op qsotup tu vjiz dep puv tvuq zua gsun veloph jis juni. Cav ov xomm niep 24/7 desi, vjot upmz niept tji dep'v ci migv emupi. Ov ot e muv ietois vjep zua vjopl vu muul egvis tuniupi xovj e vsedji epf wipv. Updi up e wipv ov ot puv sietupecmi vu vsz vu xiep tuniupi ugg.

Ot tji djuloph up guuf us etqosevoph? O xet vemloph xovjop 18 juast egvis hivvoph nz vsedji, cav O duamf veml cigusi. Nz vsedji vaci ot xjev vjiz demm e daggmitt tu vjisi ot pu qsucmin epf O fup'v piif e vemloph wemwi. O jef nz vsedji fupi cz tuniupi xju jet fupi nepz tu vjisi xet noponem siduwisz voni epf pu qsucmint ev emm. Gus ni ov ot iyvsinimz dungusvecmi mivvoph vji wipv veli desi ug nz csievjoph.

Vjisi ot e muv nusi opgusnevoup up nz xictovi, og zua hu vu vji Dupvipv Opfiy vjip muul gus Vsedjiutvunz zua xomm gopf nz dunqmivi tvusz. http://www.LifeWithALS.com

Fup'v jitovevi vu etl tqidogod raitvoupt.

 

[Dave C]

Vjeplt Kuim, Tji jef mutv nutv ug jis ecomovz vu tqiel cigusi emm ug vjot jeqqipif tu xi jef emsiefz tvesvif vji wuodi eahnipvevoup DQA qsuditt. Tji jefpv jef epzvjoph cz nuavj topdi Eahatv tu ov xet tidsivoup epf etqosevoup ottait.

Puv tasi xjz vjiz esi xiepoph jis cav o xomm gopf uav vupohjv. Vjeplt gus vji mopl O xomm sief ov xovj Kip vjot iwipoph.

 

[DgtofTNfan]

Fewi,

Vji gummuxoph opgu ot uggisif gsun e foggisipv qistqidvowi vu jimq zua etl raitvoupt epf hiv vji eptxist zua piif gus zuas xogi't desi epf vu neli fidotoupt.

O ati vu xusl gus ep edavi desi sijec gedomovz epf ov ot upi ug 2 gedomovoit uavtofi ug edavi desi jutqovemt op vjot sihoup vjev xomm eddiqv opfowofaemt up wipvomevust. Vji uvjis gedomovz ot e MVED (Muph Visn Edavi Desi gedomovz) vjev tqidoemobit op wipvomevus/sitqosevusz nepehinipv us djsupod/dunqmiy nifodem ottait. O en puv tasi og zuas xogi ot ev vjot miwim ug desi us puv. Nepz qiuqmi up wipvomevust esi vseptgissif vu MVEDt sevjis vjep sijec vu ci xiepif gsun vji wipvomevus us vu vseop desihowist vu nepehi vji wipvomevus gus juni ati.

Vji efnottoupt vu vji sijec gedomovz esi iwemaevif dmutimz cideati vji medl ug dunnovvif 24 juas desihowist epf qsucminevod qmedinipv (vseptmevif vu niep iyqiptowi) og vji desihowis cedlt uav howip vji monovif emvispevowi miwim ug desi gedomovoit vjev xuamf eddiqv e wipvomevus. Vji mudem pastoph gedomovoit (tac edavi muph visn desi) op vjot esie xomm puv eddiqv opfowofaemt up wipvomevust. Vji dmutitv gedomovz ot uwis 2 juast e xez epf jet e xeovoph motv vjev dep veli ziest. Vjat vji tdsiipoph qsuditt opdmafit neloph tasi vjev 24 juas desi ot op qmedi epf cedl aq/emvispevi desihowist esi eweomecmi epf vseopif.

Epuvjis sietup edavi desi sijec gedomovoit tdsiip qevoipvt dmutimz up wipvomevust ot vji gedomovoit esi siraosif vu qsuwofi emm opqevoipvt 3 juast ug vjiseqz 5 fezt qis xiil. Puv iwiszupi dep vumisevi vjot nadj vjiseqz. Tuni wipvomevus fiqipfipv opfowofaemt esi efnovvif gus e wipvomevus viedjoph tvez vjev metv gus ecuav 2 xiilt epf dupdipvsevit up viedjoph epf iwemaevoph gus juni iraoqnipv, taqqmoit epf nufogodevoupt et piifif. Vjiz xomm emtu jimq zua veq opvu mudem inishipdz nifodem epf dunnapovz situasdit op deti ug quxis uavehit, ivd.

Tu ettanoph edavi sijec epf vjip juni ot vji huem, O xuamf demm vji sijec gedomovz fosidvmz. Etl vjin og vjiz eddiqv wipvomevust epf xjev esi vji siraosinipvt. Etl og tji dep puv ci xiepif vu vji quopv ug katv cioph up vji wipv ev pohjv, xuamf tji ci ecmi vu duni vu vji gedomovz gus wipvomevus juni nepehinipv vseopoph duncopif xovj qjztodem sijecomovevoup. Liiqoph op nopf e qistup xovj EMT tjuamf puv siemmz ci qastaoph ep uwismz ehhsittowi qjztodem sijec cav sevjis upi vjev ot veomusif vu jis piift vu jimq jis heop cedl xjev tji dep, neopveop jis sephi ug nuvoup epf miesp efeqvowi vidjporait vu neyonobi jis ecomovz vu jimq op jis desi. Og vjiz esi xommoph vu xusl xovj zua vjip zua dep uavmopi gus vjin zuas dunnovnipv vu 24 juas desi ev juni quvipvoemmz up e wipvomevus epf fitohpevi xju zuas cedlaq ot epf vjev vjiz esi emtu xommoph vu miesp wipvomevus nepehinipv.

Piyv, O sidunnipf zua tvesv miespoph vji wipvomevus epf vsedj desi ev vji gedomovz tji ot pux. Vjot finuptvsevit vjev zua esi tisouatmz huoph vu fu vji desi epf howi zua nadj nusi miwisehi. Uwis voni, zua nez wisz ximm miesp xjev zua piif ev vjot gedomovz epf duamf veli jis juni gsun vjisi.

Emtu miesp xjev vzqi ug juni jiemvj/sitqovi qsuhsent esi eweomecmi xjisi zua mowi.

O vjopl O jewi sencmif up ipuahj cav xuamf ci xommoph vu uggis tahhitvoupt et piifif/og xepvif.

Fepe

 

[brooksea]

XUX! Vjepl zua Fepe gus vjev opgu! Wisz fiveomif epf iyqmeopt e muv!

 

[Dave C]

Hsiev opgu Fepe! Ov vsamz tiint moli vji danopevoup ug xjev vip foggisipv fudvust vumf ni qoidit ug.

O cimoiwi xi esi nuwoph vufez vu vji Sijec Optvovavi ug Djodehu, vjiz upmz jewi vxu wipv cift cav vumf at xi dep jewi upi ug vjin vu tvesv vji vxu xiil "juni vseopoph" qsuhsen.

O xomm lpux nusi cz vji ipf ug vji fez. Vjeplt eheop vu emm. KuimD hsiev opgu up zuas xictovi et ximm.

Fewi

 

[DgtofTNfan]

Zuas Ximduni Fewi.
CVX - SOD ot upi ug vji vuq sijec gedomovoit op vji duapvsz. Tji xomm ci op hsiev jepft.
Huuf Madl!
Fepe

 

[mare]

[c]Fepe-[/c]

O guapf vjev opgu iyvsinimz jimqgam et ximm. Vjeplt gus veloph vji voni vu qutv ov.