Currently Undergoing Tests For ALS

[CatM]

Just to give an update and to ask a question, please? I'm rescheduled for the EMG the 27th of this month.
Isn't dysarthria a symptom of Bulbar ALS? My neurologist said dysarthria isn't a symptom of a neurodegenerative disease. My primary has diagnosed dysarthria. Is ALS a neurodegenerative disease?

My neurologist has also said I don't have eplilepsy but yet the EEGs showed activity which indicated the diagnoses per his notes, he's prescibed an anti-seizure med, as well as counseled me regarding epilepsy seizures. Needless to say, I'm not comfortable with his abilities.

Since my primary couldn't reach my oncologist to request the brain be included in the PET scan, she's ordered a whole body PET including the brain. She did state that he should've done it first thing when I presented to him with obvious speech difficulties as well as balance issues.

 

[lgelb]

Yes, ALS is a neurodegenerative disease and dysarthria is a bulbar sign of ALS (though also Parkinson's, stroke, MS, etc. as you know). Not sure why that statement would be made. I agree that it might be time to move onto another neuro whose communication is more in line with results/realities -- preferably at a large neurology practice with subspecialists in neuromuscular and seizure disorders.

 

[CatM]

Thanks for the clarification and your suggestion, Igelb. I'm waiting for the EMG and PET results and if warranted will consult a neurologist or oncologist at Ohio State. I'm somewhat limited as to how far I can drive and am forced to wait as well on a good friend who's visiting next month and has graciously offered to drive the five hours.