kapha
New member
- Joined
- Mar 8, 2024
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- ST
Hey! I’m a male 28, soon to be 29.
9 days ago my speech started to slurre, and it still does. (But it seems I’m the only one noticing it so far). It's hard to articulate many different words at one time but eventually after trying in 10 minutes to say it again I tend to succeed.
It feels like my tounge, cheek and mouth are not coordinating and are not working properly, like it's getting weaker and I have like weird sensation on my tip of the tounge like I have burned myself and I'm going to lisp because of that. I also get tired in the tounge by talking. I start to have a harder time talking more fluent and I’m stuttering on words and slurre on other words etc.
I also have fasiculations on tounge, I can see them but I don’t feel them. I do have fasiculations randomly over the whole body as well, but those I feel. I do have a clean EMG that is 7 days old. But I’m scared of bulbar onset because I also heard a lot of people with bulbar onset have a clean emg and it have not shown anything because it is to early in the progression. And also because since I did the EMG, the speech have been progressing to the worse, that is why I am worrying.
What do you think?
I would also say that it feels in the mouth,cheeck,teeth,tounge (not all the time) like I have been at the dentist and had lidocaine which has started to wear off.
9 days ago my speech started to slurre, and it still does. (But it seems I’m the only one noticing it so far). It's hard to articulate many different words at one time but eventually after trying in 10 minutes to say it again I tend to succeed.
It feels like my tounge, cheek and mouth are not coordinating and are not working properly, like it's getting weaker and I have like weird sensation on my tip of the tounge like I have burned myself and I'm going to lisp because of that. I also get tired in the tounge by talking. I start to have a harder time talking more fluent and I’m stuttering on words and slurre on other words etc.
I also have fasiculations on tounge, I can see them but I don’t feel them. I do have fasiculations randomly over the whole body as well, but those I feel. I do have a clean EMG that is 7 days old. But I’m scared of bulbar onset because I also heard a lot of people with bulbar onset have a clean emg and it have not shown anything because it is to early in the progression. And also because since I did the EMG, the speech have been progressing to the worse, that is why I am worrying.
What do you think?
I would also say that it feels in the mouth,cheeck,teeth,tounge (not all the time) like I have been at the dentist and had lidocaine which has started to wear off.