- Joined
- May 9, 2016
- Messages
- 1,529
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- MN
- City
- Minneapolis
We went to clinic today and heard positive things. Doctor said Brian will walk for a long time. A long time in ALS terms no doubt but still good news. Progression almost non existent from last time. Progression overall slow average and not likely to get fast. Good and more good.
We got hooked up with a bath chair, safer. We talked some movement strategies. More safe, good.... We met lots of nice people. We talked Yoga exercises. Brian can do most things, which is great. He does tire more easily.
So after all this I dropped him at home went to get some food and cried and swore in the car. Just lost it. I was so desperate to get out of the office I cannot tell you.
Brian's sister is here from Indiana. I am better now. I'd really be doing great if My husband had not gone from building decks to talking about bath chairs and leg braces. Tonight, it's a pity party. It is selfish as all get out of me, we are so very blessed and have it so much better than many PALS and CALS. We have already started losing things though and tonight that makes me mad and breaks my heart.
We got hooked up with a bath chair, safer. We talked some movement strategies. More safe, good.... We met lots of nice people. We talked Yoga exercises. Brian can do most things, which is great. He does tire more easily.
So after all this I dropped him at home went to get some food and cried and swore in the car. Just lost it. I was so desperate to get out of the office I cannot tell you.
Brian's sister is here from Indiana. I am better now. I'd really be doing great if My husband had not gone from building decks to talking about bath chairs and leg braces. Tonight, it's a pity party. It is selfish as all get out of me, we are so very blessed and have it so much better than many PALS and CALS. We have already started losing things though and tonight that makes me mad and breaks my heart.