BlueandGold
Senior member
- Joined
- Feb 28, 2015
- Messages
- 634
- Reason
- PALS
- Diagnosis
- 04/2015
- Country
- US
- State
- WV
- City
- Sandyville
Bob,
There is an abstract paper on the results of the Japan Study. You can find it on the ALS Association site. Only my opinion, however the study was done in another country. I don't think the US is very responsive to other studies they did not participate in. Additionally, many people who have tried b12 in the US are usually given the Cyanocobalamin. My neurologist did not even study the trial enough to know that it specifically stated NOT to give Cyanocobalamin but it had to be Methylcobalamin.
There are many who genuinely care about this disease and want to find potential treatments. However it is just as real that if there is no money to be made from the treatment (and I'm talking about billions) there won't be much public outcry about alternative treatments, such as the b12. Seems if it isn't manufactured by a drug company, there is little interest in the medical field about it.
Vince
There is an abstract paper on the results of the Japan Study. You can find it on the ALS Association site. Only my opinion, however the study was done in another country. I don't think the US is very responsive to other studies they did not participate in. Additionally, many people who have tried b12 in the US are usually given the Cyanocobalamin. My neurologist did not even study the trial enough to know that it specifically stated NOT to give Cyanocobalamin but it had to be Methylcobalamin.
There are many who genuinely care about this disease and want to find potential treatments. However it is just as real that if there is no money to be made from the treatment (and I'm talking about billions) there won't be much public outcry about alternative treatments, such as the b12. Seems if it isn't manufactured by a drug company, there is little interest in the medical field about it.
Vince