Danni1000b
Member
- Joined
- Jan 31, 2011
- Messages
- 14
- Reason
- Learn about ALS
- Country
- UK
- State
- Surrey
- City
- South Croydon
Hello all
I posted on the PLS boards a few months ago as my 30 year old husband had been seeing a local neurologist due to spascity and spasms in his legs. The local neuro referred him to another neurologist in queens square in London saying "I am beginning to wonder if this is PLS"
We have now seen this other neurologist and have received another confusing letter! We find receiving them so stressful & have to resort to google to try and translate them!
The neuros are taking a wait & see approach which we are finding very difficult to deal with. We asked the neuro outright if he thought this was MND and he said he tells people difficult things every day and so wouldn't shy away from telling us this if it was the case but at the moment he really dosent know The reason I am posting here not on pls board is since the last neuro appointment husband has started having spasms across his shoulder blades which is a new and another worrying development.
I have copyed a couple of paras below and would be grateful for the input of anyone who has been through the long and upsetting process of trying to get a diagnosis. We read the letter one time and the EMG results have us convinced that it is only a matter of time before we have a als diagnosis. Then on the other hand, the lack of muscle wasting and the fact he has loss of sensation would suggest otherwise (he has actually recently suffered a very nasty burn from the exhaust pipe of his car that he didn't feel at all!)
Sorry fir dragging but once I start typing I actually find it very cathartic - trying to be strong and not be upset for husband is becoming increasingly difficult!
"cranial nerves and upper limbs were normal apart from some mild increase in tone that I thought was more obvious on the left side than right. Cough sniff and chest movements were normal. Lower limbs showed increased tone, again more on left than right with retained strength throughout. He walked stiff legged. I thought all reflexes were brisk. with bilateral increased plantars. There was some patchy impairment of pin prick over the lower leg on that side. I saw no fascicilations and thought muscle bulk was normal."
"The MRI of the brain and spine showed no abnormality. The neurophysiology showed no signs of either neuropathy, myopathy or denervation. There was a mild delay in central motor conduction times to both feet indicating non- specific dysfunction of cortiospinal pathways to the lower limbs whereas those to the upper limbs are within normal limits"
I posted on the PLS boards a few months ago as my 30 year old husband had been seeing a local neurologist due to spascity and spasms in his legs. The local neuro referred him to another neurologist in queens square in London saying "I am beginning to wonder if this is PLS"
We have now seen this other neurologist and have received another confusing letter! We find receiving them so stressful & have to resort to google to try and translate them!
The neuros are taking a wait & see approach which we are finding very difficult to deal with. We asked the neuro outright if he thought this was MND and he said he tells people difficult things every day and so wouldn't shy away from telling us this if it was the case but at the moment he really dosent know The reason I am posting here not on pls board is since the last neuro appointment husband has started having spasms across his shoulder blades which is a new and another worrying development.
I have copyed a couple of paras below and would be grateful for the input of anyone who has been through the long and upsetting process of trying to get a diagnosis. We read the letter one time and the EMG results have us convinced that it is only a matter of time before we have a als diagnosis. Then on the other hand, the lack of muscle wasting and the fact he has loss of sensation would suggest otherwise (he has actually recently suffered a very nasty burn from the exhaust pipe of his car that he didn't feel at all!)
Sorry fir dragging but once I start typing I actually find it very cathartic - trying to be strong and not be upset for husband is becoming increasingly difficult!
"cranial nerves and upper limbs were normal apart from some mild increase in tone that I thought was more obvious on the left side than right. Cough sniff and chest movements were normal. Lower limbs showed increased tone, again more on left than right with retained strength throughout. He walked stiff legged. I thought all reflexes were brisk. with bilateral increased plantars. There was some patchy impairment of pin prick over the lower leg on that side. I saw no fascicilations and thought muscle bulk was normal."
"The MRI of the brain and spine showed no abnormality. The neurophysiology showed no signs of either neuropathy, myopathy or denervation. There was a mild delay in central motor conduction times to both feet indicating non- specific dysfunction of cortiospinal pathways to the lower limbs whereas those to the upper limbs are within normal limits"