andymcg
Member
- Joined
- Aug 3, 2010
- Messages
- 19
- Reason
- PALS
- Diagnosis
- 02/1978
- Country
- Irl
- State
- Connaght
- City
- Carrick
I just came across this web page: "ALS/MND.
I am a patient with this disease for the past 34 years. Diagnosed in 1978, but had the symptoms in 1976. I just want to tell some of my story. That may be of benefit to others diagnosed with this disease. At first, one arm was affected, and a year on, the other one become very weak. At the moment, the two arms are almost useless and are in skeleton presentation! However, the disease did not spread to any other part of the body, yet? I was told by my neurologist, that this disease would take my life in five or six years. That was the prognostic life expectancy. The first 10 years, with this disease was actually hell, as everything fell from my hands and eating and dressing become an impossibility. However, 20 years ago, I visited the holy shrine in Lourdes. And I believe that I got the greatest gift given to anyone: "that of acceptance." I become a happy person, not dying with the disease but living with it! I take no treatment whatsoever. I write with voice recognition. Wonderful technology. I am writing this as a message of hope, to others diagnosed with this disease. I would love to be of help, and inspire others to hang in there. A cure will eventually be found. I am a prisoner of hope. Andy McGovern.
I am a patient with this disease for the past 34 years. Diagnosed in 1978, but had the symptoms in 1976. I just want to tell some of my story. That may be of benefit to others diagnosed with this disease. At first, one arm was affected, and a year on, the other one become very weak. At the moment, the two arms are almost useless and are in skeleton presentation! However, the disease did not spread to any other part of the body, yet? I was told by my neurologist, that this disease would take my life in five or six years. That was the prognostic life expectancy. The first 10 years, with this disease was actually hell, as everything fell from my hands and eating and dressing become an impossibility. However, 20 years ago, I visited the holy shrine in Lourdes. And I believe that I got the greatest gift given to anyone: "that of acceptance." I become a happy person, not dying with the disease but living with it! I take no treatment whatsoever. I write with voice recognition. Wonderful technology. I am writing this as a message of hope, to others diagnosed with this disease. I would love to be of help, and inspire others to hang in there. A cure will eventually be found. I am a prisoner of hope. Andy McGovern.