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I was responding to the request from Nuts, saying 'perhaps someone could chime in', posted yesterday. Very little chance of solving my husband's issues with doctors, but thanks for the kind thoughts.

Not looking for a diagnosis here, and not so sure whether it's important to do so, at least for the ftd. It isn't possible to force a person obtain a diagnosis and I can only wait until there is a crisis. I agree it would be best to work with doctors, especially for the physical problems.

I'm not asking for advice in handling my very hard predicament, just offering my experiences. I can only sit and observe, unfortunately.
 
I believe Nuts meant someone dealing with ALS should chime in ...
 
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