llacort
Member
- Joined
- Aug 16, 2010
- Messages
- 14
- Reason
- CALS
- Diagnosis
- 07/2010
- Country
- US
- State
- NY
- City
- Merrick
Hi All,
I'm not sure I posted here yet. My husband was diagnosed with ALS July 9th of this year.
As all of you know, we experienced shock. I think the shock is wearing off now and the reality is setting in. I think the feeling of disbelief will never leave us. I think Joey is handling it amazingly well. He prefers not to know about the disease. He doesn't read or go on the computer. He said after a day of his legs feeling very weak yesterday, "I hope to God I'll never need a wheelchair". In my mind I'm thinking, thank God he doesn't read about the disease, but also and also since open enrollment is coming up in November, I wanted to talk to him about just that, a wheelchair. I on the other hand read everything I can, know the horrible outcome and feel like a harborer of secrets. That's ok. Why visualize what's coming. My question is this, does anyone have experience with Medicare vs private insurance. My husband is 68 and we opted not to take medicare when he turned 65. He worked for the postal service and they allowed us to continue health coverage with Aetna US Healthcare. It's so confusing when you compare insurances. I know that I read somewhere a list of the specific things you need to ask your provider. The home service with my present plan is that we are responsible for 20% of the total. So that means if a nurse charges $100 a day, we would be responsible for $20 each day. I can see that getting very expensive. Again, I can't talk to Joey because its better for him not to know the inevitable yet. Does anyone have any advice about a very good health plan specifically for ALS patients?
I'm not sure I posted here yet. My husband was diagnosed with ALS July 9th of this year.
As all of you know, we experienced shock. I think the shock is wearing off now and the reality is setting in. I think the feeling of disbelief will never leave us. I think Joey is handling it amazingly well. He prefers not to know about the disease. He doesn't read or go on the computer. He said after a day of his legs feeling very weak yesterday, "I hope to God I'll never need a wheelchair". In my mind I'm thinking, thank God he doesn't read about the disease, but also and also since open enrollment is coming up in November, I wanted to talk to him about just that, a wheelchair. I on the other hand read everything I can, know the horrible outcome and feel like a harborer of secrets. That's ok. Why visualize what's coming. My question is this, does anyone have experience with Medicare vs private insurance. My husband is 68 and we opted not to take medicare when he turned 65. He worked for the postal service and they allowed us to continue health coverage with Aetna US Healthcare. It's so confusing when you compare insurances. I know that I read somewhere a list of the specific things you need to ask your provider. The home service with my present plan is that we are responsible for 20% of the total. So that means if a nurse charges $100 a day, we would be responsible for $20 each day. I can see that getting very expensive. Again, I can't talk to Joey because its better for him not to know the inevitable yet. Does anyone have any advice about a very good health plan specifically for ALS patients?