hi everyone...
i sort of disappeared from the forum for a while. was trying to keep my mind on other things. but the time has come where my aunt needs a feeding tube and a ventilator. i just can't suppress the overwhelming sorrow i feel for her. she can't speak and now can't eat or drink anything. not even a drop of water. nothing. i hate this disease so much. it's cruel and unfair. no one should ever have to experience something like ALS. i am furious that there are no significant advances to help the people with ALS so they can be stronger physically and enjoy the little pleasures in life. sorry for the outburst. i am just so torn between sadness and anger. i wish i could do something more than just volunteering and raising money. it's not enough.
does anyone with ALS know of creative little things that might help my aunt enjoy her life more? either easier ways to communicate or anything that might feel good or be entertaining. i want her to be happy.
ok, i needed to get that out!
nicole
i sort of disappeared from the forum for a while. was trying to keep my mind on other things. but the time has come where my aunt needs a feeding tube and a ventilator. i just can't suppress the overwhelming sorrow i feel for her. she can't speak and now can't eat or drink anything. not even a drop of water. nothing. i hate this disease so much. it's cruel and unfair. no one should ever have to experience something like ALS. i am furious that there are no significant advances to help the people with ALS so they can be stronger physically and enjoy the little pleasures in life. sorry for the outburst. i am just so torn between sadness and anger. i wish i could do something more than just volunteering and raising money. it's not enough.
does anyone with ALS know of creative little things that might help my aunt enjoy her life more? either easier ways to communicate or anything that might feel good or be entertaining. i want her to be happy.
ok, i needed to get that out!
nicole