Whitsend
Distinguished member
- Joined
- Jan 8, 2008
- Messages
- 105
- Reason
- PALS
- Diagnosis
- 01/2009
- Country
- US
- State
- NC
- City
- Concord
An acquaintance from clinic passed yesterday. She was diagnosed three months prior to me. When we met we were both at pretty much the same place in progression. Our disease started the same way. We were both about the same weight, although she was a few years older than me.
If you are someone who tries to measure progression based on other peoples' experience, you would conclude that I would have only three months to live (based on when were diagnosed,etc.) While physically I'm pretty much a quadriplegic, I can still eat, swallow, talk and breathe fairly well. Not to say what the next three months will bring, but I don't feel like I only have three months to go.
Therefore, everyone's progression really IS different.
If you are someone who tries to measure progression based on other peoples' experience, you would conclude that I would have only three months to live (based on when were diagnosed,etc.) While physically I'm pretty much a quadriplegic, I can still eat, swallow, talk and breathe fairly well. Not to say what the next three months will bring, but I don't feel like I only have three months to go.
Therefore, everyone's progression really IS different.