vent

Have hip pain today must be from pull him Don,t want him to know I hurt ice and heat on it hope it helps I am the only on to take care of him he is in the bed all the time with vent and trench. And peg pray today please

My husband speech is really going out too. I can't understand him and he gets frustrated and mad at me. I too go thru the cycle of things he would want/need. And again he would say no to them all, and when I would start the list all over again he would answer yes. It's like, I already asked you...

ok, semi-rant coming: So today I came home to find yet another nurse in tears. This gal is one tough cookie too so I was really surprised. I'm starting to think maybe DH is starting with some FTD. Either that or he's just being pissy to be pissy. For 6 years we have had one way of...

I apologize for not using paragraphs, etc. For some reason, I assumed that only caregivers would be reading this...pretty ignorant on my part. I like to write...as is somewhat obvious. I will try to be more succinct in future posts....Paul Maybe I haven't searched enough, but this is the...

I just need to vent and no one else will understand. I will try to keep this short. Jay's sister came up from Texas for two weeks to "help". I was really sick for one of the weeks. She did not help. Our caregiver, Valerie, told her she needs to step up because I'm very sick. She said she...

My mom is scheduled to go off of her vent and pass on 6/27. She had an emergency tracheostomy and became vent dependent 2.5 years ago. There is so much more to it, but I'm wondering if anyone on here is even available to offer advice before I do. I don't know what to expect and am feeling so...

Please don't get the bashing stick after me. I guess I just need to vent. So how much progress have we made since the first case of ALS was diagnosed? Let's see Lou died in 1941. He lasted 2 years post onset. Wow what progress we have made. Seems all the other illnesses have made advancements...

I have tried posting this thread several times over the past couple of weeks but just could not muster the strength to do it. Everyone here has so many issues that burdening anyone with reading mine adds to more guilt I have been struggling with so many feelings of grief, guilt, despair and...

hello, This is the first time I've joined any type of forum and from what I've read i feel this is a good place to start to get help to the zillions of questions i have about this new life and maybe my journey will help someone else cope. I'm a 45 year old woman diagnosis with ALS in January...

This isn't a thread directly related to ALS but you all have become my family and I'm needing to vent because I've so had it with this day . I feel like my daughter when she was younger, if we sent her to her room she would have a tantrum and scream at the top of her lungs "I quit this room! I...