vacation

  1. D

    Brother's Caregiver

    Hello, My brother who is 44 years old, moved in with my husband and I in August of 2005. He has ALS. He was diagnosed in July of 2004. It started with a weakness in his right hand and continued from there. When he move in with us he could still walk, some, with a walker, and feed himself...
    • darney2
    • Thread
    • als bed breathing brother caregiver communication communication device diagnosed feeding feeding tube hope hospice lift love medicine meds nurses peg questions taste vacation voice walker weakness
    • Replies: 8
    • Forum: Current caregivers
  2. J

    Sure! I can laugh now!

    At the time I was on my last steps before wheelchair I could still manage a short distance with walker or crawl along a wall. We were in Las Vegas with 10 friends for my last big party vacation. My wife and I were in a accessible room at MGM .One day my wife was out while I was in the shower...
  3. Eponine

    How long?

    Hello, My dad was diagnosed with ALS in July. It's been a rough couple of months. He has gone downhill quickly. He is in a wheelchair more and more (he is going for a wheelchair assessment at the end of the month for an electric one) We went to the Lahey Clinic and they reconfirmed the...
    • Eponine
    • Thread
    • age als arm bipap breathing choking clinic dad diagnosed family feeding feeding tube help! mobility sleep vacation wheelchair worries
    • Replies: 5
    • Forum: General discussion about ALS/MND
  4. G

    communication ...with no functioning limbs

    I don't mean to piggyback on the last thread about communication, but my grandmother needs a communication device as well, as she is quickly losing her voice. However, she cannot lift her arms at all and can barely use her hands. My ALS society person is on vacation too, and I intend to call...
  5. E

    Going on vacation

    My wifes Father has recently been diagnosed with ALS. He's known for over a month now. Me my wife and her brother and sister would like to take Mom & Dad to the Dominican Republic-Punta Cana. My Father in law started crying and told mom he won't go because of the financial situation. Well my...
  6. M

    Need to vent... accepting als

    Hey there! I apologize if this post rambles and is hard to follow, but I really need to vent and you guys are so awesome at giving me advice! I'm trying to figure out how to achieve a balance between feeling mad/sad/worried and having acceptance. I know that I shouldn't expend a lot of energy...
    • MarciaA
    • Thread
    • advice als ankle balance disability driving exercise fell hearing hope ideas mad sad vacation vent work worried wrong
    • Replies: 15
    • Forum: Current caregivers
  7. D

    I'm back

    Hello everyone, I was gone for a while, and it is nice to be back. My family moved, and it took forever, it seems, to get the internet back up and running. I just wanted to give everyone an update on my dad. He has been doing the Lyme's treatments since June now, and the doctors have been...
    • dana
    • Thread
    • als back brother dad eyes family happiness hope ice lyme medical running symptom treatments trip twitching update vacation voice wanted work
    • Replies: 1
    • Forum: General discussion about ALS/MND
  8. L

    Finding Faith and the road ahead...

    I am reluctantly a new member here. My dear mother, age 57, was diagnosed with ALS a few weeks ago and I was shocked at how casually the doctor mentioned it without any type of emotional preparation. Since then, we took a family vacation to Cuba and are waiting for our second specialist...
    • Lily
    • Thread
    • advice age als balance choke cure design diagnosed eating family healing hope information love mobility neurologist new member preparation reading rilutek symptoms unknown vacation weakness wes
    • Replies: 4
    • Forum: General discussion about ALS/MND
  9. D

    Mini Vacation

    Dave add i are going away today to a couple's resort up near algonquin park! we'll be coming home on tuesday. we have our own cabin with a fireplace sauna and jacuzzi! soooo romantic! we're going horseback riding, dog sledding, snowmobiling and skating! i've been busy this week and haven't...
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