unknown

  1. lgelb

    Early BiPAP

    While not conducted in ALS, this small study of healthy volunteers, complemented by work in some of the other dz states mentioned below, suggests that early BiPAP might help protect neurons. BDNF administration was tried and failed in ALS, but seemingly for reasons more related to the...
    • lgelb
    • Thread
    • als bdnf bipap dementia depression design diabetes early exercise hours immediately medical oxygen pressure relative sleep unknown volunteers work young
    • Replies: 4
    • Forum: Research and trials
  2. F

    mortons neuroma and als

    i have been diagnosed unofficially with als,by neurologist upon visual inspection.in the meantime i have had emg,mri of c-spine,and blood test.official diagnoses is unknown,but anyways before i showed any symptoms of als (tight feet and calves) i developed neuromas in both feet a month...
  3. H

    Spastic Paraparesis

    Hi everyone, I just wanted to see if this is the correct place to post? I have been extensively tested in the UK for ALS. EMG clean, all other testing normal. I have had two neurologists give the same opinion and the findings are "Spastic Paraparesis, cause unknown". You will see from my DIHALS...
  4. P

    Me again. Scared to death this time. Help?

    Weakness and muscle atrophy & other. 19, male. A weakness developed in my arms and legs few years ago. It was mild and only at times first, now it seems to be semi-permament, varying from low, almost unnoticeable, to extreme. Other symptoms are various pulsing, tingling, burning, they aren't...
    • p1xel
    • Thread
    • als atrophy book breathing breathing problems burning choking death emg exercise food heart hope increase iron keyboard magnesium mri muscle muscles neurologist problems running scared symptoms unknown weakness wrong
    • Replies: 13
    • Forum: Could this be ALS?
  5. H

    My sister just lost her job

    My sister was just diagnosed with ALS in December, and a recent evaluation indicated that she is also probably in the early stages of frontotemporal dementia. She has worked in an academic position for some 35 years, but on Friday she was told that she was to begin disability leave immediately...
  6. M

    New MDA/ALS Clinic

    Hello Everyone! A little good news for people in Northeast Oklahoma! I am still a young pup when it come motor neuron disease and their types but I am learning fast, thanks mainly to this forum so far. I am a veteran and the my therapist at the VA sent out an all call to all the social...
  7. P

    Frightened about hoarseness

    Hello I'm 24 years old. In November 2015, I started to complain of strange symptoms: pain and stiffness in the ankles, wrists, strange feeling and some kind of pains in the fingers, also I started feeling some muscle twitching. I also started to feeling forearms stiffness. I also felt some kind...
    • PeJey
    • Thread
    • als symptoms als? back bulbar burning emg fingers food hearing heaviness lyme mri muscle muscle twitching muscles neurologist pain relative shoulder stiffness swallowing symptoms test thumb treatment twitching unknown vitamins weakness worry wrists wrong
    • Replies: 7
    • Forum: Could this be ALS?
  8. J

    Help finding a PLS specialist or leading researcher

    In December, my husband was diagnosed with PLS by Dr. Stanley Appel at Houston Methodist. We really liked Dr. Appel, but my husband is worried he is getting worse. He was running a half marathon in June, but is now walking with a cane and has had a dozen falls. He recently is complaining of...
    • jdg222
    • Thread
    • advice als? back baclofen brain caregiver clinical diagnosis emg free frustrated hope mri new caregiver physical therapy pls questions research running second opinion swallowing test unknown video vitamins wanted worried
    • Replies: 28
    • Forum: Primary lateral sclerosis
  9. N

    ALS or MMN?

    Hello everyone, Been reading these forums for a month now ever since MND was brought up by my Neurologist. I wasn't sure which topic to post under i have had one DR here at Jax MAYO diagnose ALS, and the Neurologist i first started going to was leaning towards MMN ( i see him again on tuesday...
    • Nolesac
    • Thread
    • als anxiety arm atrophy brain cold cramping diagnose diagnosis fatigue finger immediately ivig life mmn mnd mri muscle neurologist pain reading shoulder symptoms thumb twitching unknown video wanted weakness wrist
    • Replies: 35
    • Forum: Could this be ALS?
  10. A

    Thick secretions in the back of my throat

    I have had thick, salty secretions in the back of my throat for some time. Some times saliva also gets thick. When saliva is not thick and the secretions in the back (I think they come from the nasal cavity) are not too thick, I can swallow the saliva and it carries some of these thick...
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