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  1. B

    Status, new guy billy D

    Well I didn't get to my emg apointment outpatient. My legs gave out at work due to extreme cramping so ended up in ER. On admission had no patellar reflex's or any in feet. For 4 days had every test the hospital could give, MRI's of brain, spine etc. Lumbar puncture with resultant cranial...
  2. T

    not sure of als/pls or something else

    Hi, I'm looking for some guidance I guess. Back about 1995, I had about 3 bouts of sensations I can only describe as my muscles feeling like "concrete". It was kind of scarey but passed, and I forgot about it eventually. Now, forward to two years ago, all of a sudden I experienced severe muscle...
  3. Citlalli

    Andres is Free

    My beloved husband Andres passed away peacefully a week ago. It was all so very joyous and beautiful, he hardly suffered at all. From the day before he entered a magical space of feeling very good and laughing and telling all of us how much he loved us. We all had so much opportunities to...
  4. ZenArcher

    Nanotechnology Identifies Peptide 'Fingerprint' In Both Forms Of ALS

    I copied this off of the ALS TDI forum: Source: University at Buffalo (http://www.buffalo.edu/news/8821) Date: September 16, 2007 Nanotechnology Identifies Peptide 'Fingerprint' In Both Forms Of ALS Science Daily — A nanotechnology developed by a University at Buffalo professor has...
  5. Jamiet

    For those of us in unknown land...read this...

    I'm not trying give anyone false hope here, only posting what i find to be real, geniune stroies, i've spoken to two of these personnaly. Pay close attention to who wrote the thread, you will see a chain of progress from a few people. For those of us, who are in unknown land (Normal EMG, NO...
  6. L

    Those frustrating neuros

    On 7/11 I went to my neuromuscular clinic to get the results of my muscle biopsy. The new resident came in and did a full exam first, without filling me in on the results. I did have some anxiety and tried to make small talk with him, but he held his head high with one of those...I am a...
  7. E

    My EMG came back clean

    Grandpa AL, Quadbliss and others I can't remember, Thank you so much for your mental assitance for the short time I was here. Fortunately, I am well as my EMG came back clean. If there is ever anything I can do for you all please dont hessitate to ask ( I'm a US pharmacist). I will check...
  8. Lorie

    CVS Pharmacy/ALS Annual Fundraising

    CVS Pharnacy has 6,200 locations. They are doing their annual fundraising June3-23rd. When I was in there Sunday (i'm there every other day) I donate everytime I go. In Timothy's name. There was an older man behind me when I was leaving, the cashier asked if he wanted to donate, he said I will...
  9. L

    Muscle Biopsy-YUK! Jamie Don't Read!

    Annmarie, you asked for it....you guys up for a little story?! Well, I started off with a generous dose of anxiety. I noticed it kick in about fifteen minutes from the hospital. So, I popped a Xanax. It didn't do much. After walking about 1/2 a mile through the university to the clinic...
  10. P

    symptoms - no diagnosis yet. advice?

    Hello everyone. I hope you can help me. I'm a 36 y/o female, nurse, mother of three. I have had 15 months of neuro symptoms but no diagnosis yet. Wondering if anyone else had similiar symptoms. I started with headaches occuring throughout the day, forehead and temples and numbness/tingling...
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