Hello all. Just wanted to thank anyone for taking the time to read to and/or respond to my post.
In June, 4 months ago, my shoulder started to hurt. I had to quit my job because of the pain. I was diagnosed with shoulder impingement, and got several cortisone shots, attended physical therapy...
I had my first appointment with the physical therapist today. I was with him for an hour and a half and he did a thorough evaluation. He has worked with MS patients (one was there at the time I signed in) and he actually requested more information about ALS. He understood the disease but...
My father has been suffering from upper motor neuron signs over the past three years, with no apparent lower involvement (clean EMG and still no fasciculations), which led doctors to think of PLS. In a second EMG, the results are indicative of "mononeuritis multiplex or motor radiculopathy", but...
just to inform forum that i was hardly waiting for a new als prolonger, paid reasonable, didnt pass the customs, so all my ships - sinked.
they showed me ibudilast on customs. opened the box, saw all vials and powder, kiss godbye.
intented to be as a add-on to rilutek.
it is returned to sender...
I recently listened to two seminars sponsored in part by the Steve Gleason Foundation. The subject was Medicare-paid custodial care. The basics to qualify are: 1) a patient must be home bound. 2) must require professional medical care such as skilled nursing, speech therapy, or physical...
Hello Everyone, we’re having a really rough day today so I decided it’s time for me to reach out. My husband got his first diagnosis 5/21/18 and a second opinion confirmed it 6/14.
He started noticing weakness in his arms on one side just after Thanksgiving. It then progressed to the other...
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Thought you guys might be interested to hear how the Brainstorm conference call went today. Seems like the CEO Chaim Lebovits really wants to make NurOwn available but the logistics are up in the air and nothing is confirmed...
I have PLS. Today is my first day on. I am looking for anyone who has had stem cell therapy and what the results were. I have been doing research on this for about six months and still can't find someone besides a knee injury that has had it done.
https://journals.lww.com/neurotodayonline/blog/NeurologyTodayConferenceReportersAANAnnualMeeting/Pages/post.aspx?PostID=65
LOS ANGELES–An experimental drug that regulates inflammation and showed a strong signal in a pilot study in patients with amyotrophic lateral sclerosis (ALS) failed to...
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First Thread -
https://www.alsforums.com/forum/do-i-have-als-als/40863-twitching-abnormal-emg-terrified.html
I thought I would update in case there was anyone reading my original thread, who was comparing their situation with my own...
I was able to get an appointment with a new...