Myth No. 1: Hospice care is only intermittent.
The truth: There are multiple instances of PALS who have needed and received 8, 16, or even 20 hours per day of in-home nursing shift care. Unless a patient’s insurance plan clearly and specifically limits it, there is no limit to the amount of...
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I was concerned with symptoms of ALS. I've had twitch all over my body, first in the legs, then all throughout my body. This has been with me for the last year or so, but progressively got worse. I got much more concerned when I had carpal tunnel symptoms, which progressed into an...
I have PVA as my rep and they also want a DBQ to file claim even though my VA medical records under active problems they have ALS and the VA Doctors from Nuerology and Pulminary refused to sign one. I have been to a Neuro outside VA and they even refused as well as just agreed with VA. My...
Hi Everybody,
I only posted a few times in the Newly Diagnosed section. And I find it very difficult to post anything... My dad has been diagnosed in November. He's in Europe, I'm in the US.
Where he is, healthcare really sucks, and I find myself asking questions on different forums, or taking...
I want to preface this post by saying I have already sceduled an appointment with my doctor in two weeks. I would also like to say that it's incredible and inspiring to read the stories of those afflicted with the disease, and to see that some who are fighting it would lend their time to answer...
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Hello everyone,
My username says help1127 and I have been trolling this site plus asking questions for 3 years or more. through all of this I have many symptoms on top of that I have seen 4 neurologists and 3 ALS neuromuscular specialist at USF and UF Shands. I also know I have been suffering...
In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...
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I'm having a problem with elevated heart rate. It's usually okay in the morning but gets up to 95 to 99 in the evening. My PCP has increased my B/P medication, and this has helped a little.
The only times I am short of breath is when I am exerting myself--getting in and out of bed, getting...
In September 2016 I had issues the 1st week speaking so my primary VA Doctor prescribed a week long medication for laryngitis and after taking it, nothing changed.
By the end of the 1st week of October 2016 I was unable to speak, yet ENT Doctors at VA said my voice box was okay from test and...
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