Hi All,
My bulbar onset dad who refuses a peg has more and more problems with not being able to cough out whatever bothers him in his throat, or deeper than throat, and also with saliva or mucus - I am not sure he knows which one is the bigger problem; he seems to think it's saliva, and its...
started yesterday afternoon And causes hours long choking episodes
no fever but my family has had bad colds
feels like annoying nasal drip but can't cough it up even with cough assist and suction
bipap air blowing down my throat is causing more violent episodes
don't think it's sickness...
Dear all,
Thanks to a wonderfully useful website to those who are affected by this horrendous disease. I do wonder if anyone who has been diagnosed with ALS has had the following course of events which I'm currently going through.
My current situation is as follows:
I am a 29 year old male who...
als
als?
back
breathing
bulbar
bulbar als
christmas
coughing
diagnosed
early
fasciculation
ice
improvement
last days
life
lift
lump
neurology
saliva
speech
swallowing
tongue
weakness
website
Hi,
I want to start by saying I am aware that this is a very serious illness and am in no way trying to make a mockery out of it, however, I'm here because I'm trying to educate myself on the disease to better assess whether I have it, what my risks are etc.
The last couple of months I've...
For 2 years now i have the following problems (excuse for the faults, come from Holland), my problems;
-symmetrical weakness in legs, a bit in arms, a litte increases in 2 years, look thinner
-little stifness upper leggs, specially walking downstairs
-problems with swallow foot, liquids going...
als
als?
back
bed
brain
clinical
cold
dysphagia
emg
food
foot
is this als
is this als?
mri
muscle
muscle weakness
muscles
neurologist
pain
problems
research
saliva
spasms
swallow
tests
twitches
weakness
worried
Hi all,
I want to thank anyone in advance who can shed some light on my situation.
I’m a 25 year old male with no existing health conditions. Starting about 6 months ago, I’d occassionally have a period of 5-10 minutes where I’d feel like I was unable to breathe well. This would happen...
About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...
Can you please recommend what brand of cough assist or suction machine to buy for my dad. He complains that his saliva is too thick now, and i don't know where to start.
Should we tell this to our dr so that he prescribes one, or is this something that is normally not covered by insurance...
I use thickened liquids by mouth and my tube for most of my liquids, but there are some that I enjoy thin and still indulge in, like a daily cup of tea or coffee. Plus there is always saliva in my mouth, and sometimes I choke pretty hard on my own saliva.
Today I had a bad aspiration/choking...
After quarterly spirography testing, my FVC has been 96% + since diagnosis in June 2016. However, my most recent test (last week) shows I have dropped to 71%.
My respirologist is concerned, as that's one big drop, and has booked me for another test in December instead of waiting quarterly. He...