food

  1. J

    Getting worse Probably Bulbar

    Hello !! I'm not trying to offend anyone, please forgive me if you feel I'm being disrespectful to anyone. I strongly believe I have ALS bulbar onset. Like a month ago, I noticed that some solid food was getting stuck in throat, I had to swallow twice so it could go down. I'm still having...
    • jmendozd
    • Thread
    • als anxiety back bulbar bulbar onset choke dysphagia eating fasciculation fasciculations food neurologist nose onset problems questions slurred speech slurring words spasms speech swallow swallowing symptom symptoms tongue treatment weakness work worry
    • Replies: 3
    • Forum: Could this be ALS?
  2. G

    VM BioPharma's VM202 granted fast track

    The U.S. Food and Drug Administration (FDA) has given Fast Track designation to VM BioPharma’s lead investigational drug candidate, VM202, a potential gene therapy for the treatment of amyotrophic lateral sclerosis (ALS). Link here...
  3. N

    Need Guidance/Support

    Hi. I am really in need of advice and guidance. My husband who is 36 has been dealing with some issues that have me really nervous and scared. Let me start by saying we have our first neuro apt scheduled for Monday, May 16th. About 20 months ago my husband's back and left shoulder, arm, and...
    • njk0407
    • Thread
    • advice als arm back coughing crying early falling fingers food kids life scared shoulder speech support surgery symptom symptoms tongue twitching worried worry wrong
    • Replies: 6
    • Forum: Could this be ALS?
  4. KimT

    Mayo Clinic's Pain Rehab Center?

    I went to Mayo today and met with a pain management doctor. He recommended my trying out their pain management comprehensive program. He has never had an ALS diagnosed patient in the program but has had MS. The program seems counter intuitive to what I imagine would be appropriate treatment...
  5. R

    need some help please, opinion.

    OK about 2 years ago I couldn't swallow pills like advil. Then I got a tingling feeling that affected the bottom of my left arm and my pinky and neighbor finger. Now I got it in my left ankle and right big toe. I wake up with my ankles locked and calls tight. More importantly even though I have...
  6. K

    bulbar? young

    Hello everyone, i am 21 yo guy and i have still more and more problems last time. Before 2 years i was diagnosted with crohn disease. Now i have some symptoms of ALS i think. 1, I must clear my throat for more than 1year know, there is always mucus in the back of my throat which i must spit...
    • kolcix
    • Thread
    • als als? back bulbar emg fasciculations food last days mucus muscle problem swallow symptoms symptoms of als test twitch voice young
    • Replies: 5
    • Forum: Could this be ALS?
  7. M

    PALS is parent...how to manage relationship

    First time posting. Signing up as a CALS. Dad has had ALS for 3 years, he is not doing well. Having trouble breathing, unable to talk, move . Taking food through feeding tube. Always uncomfortable in pain. He's 53, I'm 23. Mom and I are both caregivers, mom more than me. But I'm still doing a...
    • missfrozenwater
    • Thread
    • age breathing cals caregivers dad feeding feeding tube food frustrated life pain pals support wanted
    • Replies: 10
    • Forum: Current caregivers
  8. C

    Feeding Tube

    My Pals is steadily losing weight -- 40 pounds since diagnosis in Feb 2014. He still eats by mouth but it is becoming more difficult. I have modified food textures, lots of soups, soft foods and I use the stick blender on many things. He still indulges in an occasional cookie and few chips on...
    • codyclan
    • Thread
    • blender choking clinic cough assist diagnosis eating electric wheelchair feeding feeding tube food fvc lifts nose problem speech transfer wheelchair
    • Replies: 14
    • Forum: General discussion about ALS/MND
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