eyes

It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...

I wanted to share some exciting news... My dad had been using a Head Mouse until he could no longer move his head, about two months ago. There are plenty of expensive options for "eye tracking" - but I found a $150 device on Amazon called Tobii Eye Tracker 4C. It's designed for gaming, but...

If you have other health issues, do your best to treat them and keep them under control. Also, keep your routine maintenance such as teeth cleaning and eye exams as long as it's possible without any undue stress to your body or mind. I knew I needed two crowns replaced. I knew it two years...

Hello everyone. I would first like to say that all of you who contribute to this forum are incredibely strong and many people, such as me, tremendously value your efforts. I have been lurking this forum for the past two-three weeks. I am extremely concerned about what is going on with my body...

My dad has his peg placed yesterday. He was already week and losing weight and choking so badly - for hours, every single day.... At first I was so happy and relieved.... No more choking, and hopefully he'll become stronger eventually. And it was a miracle he decided that peg was a way to...

Hi all, I have lurked for about a week but alas here I am. I am a 29 year old mother of 2 and am coming to terms with the fact that I most likely have this disease. I remember seeing my uncle get weaker before my eyes (not blood related) and can imagine how scared he was. This is going to sound...

Hi everyone, I want your opinions in my case. I am a 25 yo male, living in Netherlands and for the past 2 months i have been experiencing some symptoms. I know it is almost impossible to have als at my age with no family history, but the anxiety these past months is creating other problems in...

Because of ALS, Darcey's legs often ache or itch. Her left leg, in particular, bothers her the most. She likes for me to push against her shin with the heel of my hand. She says that the pressure just feels good. My daughter has her rabbit staying with us. Darcey likes having the rabbit...

I’ve been very reluctant to post hear in an effort to be mindful and kind to those who are currently living with this disease or have been directly impacted in some way by ALS. Please let me take this opportunity to first apologize if I upset any one or offend anyone...or even if I make myself...

I am a 22 year old female. About 3 months ago I my right thumb started twitching. It would twitch everyday out of no where. I googled my symptom and als was the first thing to pop up. My twitching has since spread all over my body both of my arms, both of my hands and fingers, and feet, my legs...