I wrote a while back about the laryngospasm I had the misfortune of experiencing and found there are other ALS patients that also suffer with this.
I've had 5 or 6 all total. None of which where as bad as the first. With the subsequent spasms I could at least get a little air in and they...
Hi all,
In the past week, I've developed some serious coughing problems at night, to the point that I'm not sleeping well at all. I'll have little coughs, and when I try to take a full breath in, I only get a bit and have to cough again. As for the gagging, it's hard to describe the sensation...
I am fairly new on this board, but am already fascinated that some pretty strong pronouncements are made here in a sphere (brain and neuromuscular disorders) loaded with ambiguity and uncertainty. It is so common on these pages for someone to post the disclaimer that "I am not a doctor and I...
Checking in on a Wednesday for a change. Was going to start a new thread, looking for advice, but not sure what I would call it. Went to clinic last week and respiration function was surprisingly good - no change in 3 months (71%). But fatigue is more noticeable and confusion continues to...
We have little kids and if you know kids, you know they are little germ factories. Colds go round weekly at preschool. What do I do to keep my husband safe from it? His Fvc has been 100% so breathing is still strong but he is having a real problem coughing (his cough is weak) and he's worried...
Hi I am wondering if someone could help?
I am a 36 year old female. I had my third baby 9 weeks ago.
During pregnancy I started noticing my left eye felt strange. It then progressed to the muscles on left side of my face feeling tight. Everything moves normally.
Due to having headaches aswell...
Hello, I hope you can help me, and I apologize for asking such a difficult question, but I feel very overwhelmed right now. My mother was diagnosed in July with extremely progressive ALS. When she was diagnosed her lung capacity was at 30% and has diminished considerably since then (while...
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Hi everyone. First, thank you so much for this forum! I've been reading a lot in the last several days and now feel ready to ask some questions. Forgive the lengthy backstory, but I feel like it might be important.
My 72 yo father-in-law began having difficulty swallowing followed by...
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Hi All :)
Just wondering if anyone has had any luck with voice strengthening exercises? Also wondering if anyone else is experiencing chronic coughing (especially when speaking)? I've had a cough for about three years now, which all of my doctors believed was allergy related. After a year of...
Hello,
I woke up at 3:00 AM this morning and couldn't breathe. My throat was nearly closed completely. All I could do was squeak in some air. My husband heard me and jumped out of bed to try to assist me. I was in a major panic. I could only get 3 or 4 words out at a time...very squeaky...