cold

  1. jethro

    Warm-cold foot

    Can anybody comment how should be feet temperature in ALS? Warm, cold or doesnt matter? I had cold feet by march, and then, suddenly, i got warm all over my body, esspetially foot. Guy with more ALS experience said that it is related to supplements i use. i use just b vit, e vit and q10, some...
  2. S

    Bulbar ALS?

    Alright so about two months ago I opened a post stating that my speech/sudden lisp has been bothering me. (I couldnt figure out how to re-open the thread so im sorry for posting twice) And honestly it has gotten worse, many s and z’s now come out as a whistle and i have to talk slower to make...
  3. A

    Is this ALS or hypochondria?

    Hi guys, and sorry for my bad English. So, I am 21 year old guy from Finland and I have had some very scary symptoms about two months. First all started in my left foot, which has some myokymia in my calf and sol. Then myokymias started to spread to my right foot and little to my both arms. My...
  4. G

    37 y.o. - Long term symptoms, muscle loss recently - please help

    Hi all, I'm a 37 old male finally posting here because I've become very anxious recently. I did read quite a few posts and I understand time is an precious asset, so I really appreciate if you can share your point of view. My symptoms from the most recent, most worrisome to the oldest (I know...
  5. E

    Lip tremors tired tongue

    To begin with, I have seen a neuro. I have diagnosed IIH (high intracranial pressure) and already had a follow up appointment where I mentioned these new symptoms. I am awaiting CPK levels. About 1 week ago my lip froze. I couldn't move it - it was just my upper lip and it drooped down and...
  6. J

    Possible AlS/MND?

    I have read stickies and discussions above. I should start with I’m 24 year old male who has health anxiety. A couple months ago I had pins and needles sensation throughout my entire body. From then I would have days of all limbs feeling fatigued and tired. After that I had a near syncope...
  7. D

    Difficulty supporting a partner

    I’ve been with my partner for almost five years but we don’t live together and don’t plan too. Only a few months ago I experienced the sudden unexpected death, by fentynol, of my eighteen year old daughter. I’m still trying to cope with that. My partner has always been unable to be supportive...
  8. A

    Muscle wasting both hands

    Hi :smile: I want to send my best regards to all participants of this forum, I respect all people affected by this desease and wish them to stay strong. I sympathise with people who lost loved ones to ALS. I hope you can help me to get an idea of what might be happening to me. 3 months ago I...
  9. Nuts

    Silent Aspiration

    We are four years in---why had I not heard of silent aspiration before today? Between November and January, hubby went through three rounds of pneumonia and one case of flue. It's been tough, but he's doing better. He was explaining to the Speech Therapist that he went through weeks of...
  10. Tedstehr

    Luck

    A lot of us feel we have Awful Luck Syndrome. But this recently dawned on me. In our universe, there is an infinite area of absolute cold and darkness, unable to support life. Then there is a much smaller area that has heat so high that it would kill any life. And then there is our planet, that...
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