clinic

Veterans with ALS need to know that in order to get their special monthly compensation (SMC) increased as their condition worsens they will need to get a Disability Benefits Questionnaire (DBQ) filled out by a doctor of your choice or submit for a C&P exam arranged by the VA. My recent...

Recently diagnosed w/ PLS & approved by VA 100% disabled, my husband is having difficultly accepting both. He knows he has health problems like difficulty speaking & very low on energy but he doesn't think he has PLS. We already received a 2nd opinion from the Mayo Clinic who agreed w/ the 1st...

I would tell all veterans that deal with the VA and have been diagnosed with ALS to do the following. 1. Get with the Paralyzed Veterans Association (PVA). Let the PVA fight the VA for you. When I was diagnosed with ALS at the Mayo Clinic in Jacksonville, FL the ALS Association...

My 82 year old grandmother was diagnosed August 1st after falling July 19th. When we took her to the hospital to make sure she hadn’t broken anything (which she didn’t). I never imagined this diagnosis. In the ER, she couldn’t hold or lift her right arm at all and she was in able to lift her...

Hi- I’m new here and was diagnosed 4 months ago. My symptoms started a year earlier! Started with falls then foot drop. Also cramps and fasiculations. It was terrible at first but I’m adjusting now. My ALS clinic is great and the local ALS Association couldn’t be more helpful. I’m on Riluzole...

My Mom will be 89 in November. She was always very busy, doing her own cooking, cleaning, etc. She got out with friends a couple of times each week. She was just diagnosed in July with Bulbar ALS and is having trouble speaking clearly. Is there anyone out there who was diagnosed at this later...

My PALS has just been diagnosed and not had their first visit at the ALS clinic where they will meet with all of the specialists, occupational therapists etc. she had neck surgery 9 months ago and symptoms increased after that, she was diagnosed with locked shoulder and treated for that for well...

hi, i am new here and want to apologize ahead of time if i ramble but i am looking for input on what is going on with my husband. my husband is 40 years old and has had twitching in his arms for over 2 years, he has never thought anything of it just thought it was a weird twitch. in january in...

Good Morning, First, I would like to say that I am truly humbled by the members of this forum, who daily give their advice, encouragement, insight to strangers filled with worry. You truly are special people that inspire me to do good and “pass it forward” I never thought I would...

I will be attending my first Clinic Visit next week. I was diagnosed in January but received a second opinion from my current doctor several weeks later. In May, I did have a follow-up visit with my doctor concerning my first three months with Radicava infusions and to check my progress. My...