cals

First, I want to thank all the contributors to this forum especially PALS/CALS. I do recognize that your time is valuable. Yet, you devote so much time to helping others (a large percentage of people that don't have anything that remotely resembles ALS) which is truly remarkable. About 10...

My husband was formally diagnosed with ALS in February of 2018, although he has had foot drop for over two years. We have been told his progression is slow and did get a second opinion at a highly regarded ALS center. I think we were both afraid to ask many questions about his progression but...

I went to my first ALS Assoc CALS meeting and everyone went around the room describing their PALS current situation and when it started, how it started, details, etc., in quite length....and I was unfortunately last on this circle of sharing (first time, hate sharing anything usually in public...

Hi, Folks. My name is Bill; I'm a new PALS, diagnosed in October, 2017, and also new to the forum. As I looked at some of the threads, I was impressed by the courage and compassion of the members here and wanted to introduce myself to the group. My experience started with foot drop in the...

Hello, My husband has just ended his clinical trial (he dropped out March 28th) for Pimozide. Apparently, he's not progressed in his right leg or arm since last September but has only slightly in his left leg, which is his drop foot leg. However, I am finding it harder and harder to believe...

Hello, Did not know if this was the appropriate category to post in, so my apologies if that is the case. Have perused/read several threads on here for months now in search of some guidance. I have two specific questions/topics: 1) Had to move for work recently so finding a new GP (first...

A very early good morning to you all. If I may reach out to Nikki J, Nikki as promised a further update to our now closed thread of September 2017. Further to your appreciated education, direction and further extensive MND/ALS testing by the neuromuscular specialist at the Walton Centre...

So we are being told that since my sister is on a bipap machine that medicare will not pay for hospice. Some say that they will take her but eventually she will have to come off of it since its "prolonging her life". My question is for the CALS that have gotten hospice. What all do they do for...

is there any way a pals can sleep on their side in a hospital bed and have their cals turn them onto their other side two or three times per night?

I am grateful for this forum and appreciate all the helpful info and camaraderie....hello and thank you!