breathing

I have read the “Read Before Posting” section and must admit that I do not have clinical weakness. However, my symptoms are not typical of limb onset ALS, but rather respiratory onset (or perhaps thoracic?). Quick information about me, I am a 30-year-old male. I completely understand the...

I’m a paramedic and this January. I started having symptoms very vague almost stroke like symptoms that took me to the emergency department on several occasions. Since that time I’ve gotten progressively worse. I’ve had every blood test imaginable and probably MS was the diagnosis. During this...

I have now been advised to have a PEG port placed in my stomach since my breathing has taken a turn for the worse. I can still eat and drink, but I was told my FVC was now down to 50% so it's time to do this procedure before my breathing becomes even more compromised. The procedure would be done...

Firstly, I want to appologise if I broke the rule posting another thread, but I can’t find my last one. I’m really in nuts end! My whole side is atrophying even more. Now my deltoid and back muscles on that side are smaller, and i have winged scapula-my GP said that, although it is really mild...

Hi guys, I posted a few times already here about my mother who has a possible diagnosis of ALS, but seronegative Myasthenia Gravis is also still being considered, but it cannot explain the hyperreflexia of her legs. So they think ALS and MG or maybe cervical radiculopathy. She has atypical...

Hi, I’m 20 years old. Over the last three months I’ve been experiencing a range of symptoms such as weakness and twitching all over my body particularly in my arms and legs which is usually visable when I lie in bed . In addition to that, I’ve been having congestion around the nasal cavity and...

It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...

Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...

Hello All, My name is Meaghan, and my mom Nancy was officially diagnosed with ALS in December by the Cleveland Clinic. We've had a scary few weeks, with her going into the hospital May 1 (trouble breathing), and coming out with a trach, Trilogy, and PEG tube (and all that comes with that-...

My PALS a mask that just covers nose and mouth will give him a pressure sore on the bridge of his nose if he wears it too long. So he wears a full-face mask almost all the time. That only works without his glasses. He has a humidifier on his bipap or his mouth would become a near desert. So...