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After aspirating into her lungs Friday night, Kathy was admitted to the comfort care department of the hospital, where she received the most loving, tender care by an amazing and professional nursing staff. My sister, mother and niece gathered around her bed and sang Barry Manilow songs at the...

I have been using a wheelchair for 9 months and think I have learned enough to make it worthwhile sharing a few things. For background, I now have 3 wheelchairs. Primary chair is a Permobil C500s VS (I have over 650 miles on it now) Backup chair is a Permobil C500 Corpus 3G (I have only put...

My story starts 4 years ago when I started getting a twitch on the left side of my face. Went to a neurologist thinking I had a brain tumor. Had an MRI no tumor no MS. Went on with my life for about 2 years on July 27th 2013 I started having wide spread twitching and googled. Well here came...

My husband was diagnosed with bulbar onset ALS in August (so we've lived with it for 5 months or so now) and his symptoms have progressed. But what has surprised me the most--and has been the most difficult thing to come to terms with or manage--has been the change in how he processes...

It's been awhile since I have posted, but I read the forums everyday. My PALS continues to progress, however, I am so in awe of him in that he lives his days with purpose and fills his life with joy. This weekend he took our eldest daughter, 24, on a weekend trip to Texas. He needs help...

Reminding everyone that I am 31 y/o male. I have continued to follow this site every so often even though I have done my best to finally put these fears behind me. People like Atsugi, Nikki, and Affected are some of the names whose input I read and really help me in trying to overcome my fears...

My son Sam is 17 years old. He is a junior at Topeka High School. Sam is a tall and very thin young man. He started telling me over a year ago that there was something wrong with the fingers in his right hand. I didn't believe him, but I did mention it to his pediatrician over a year ago when he...

Today is Grand Final Day...let's have some background. Years ago it was the Victorian football league. Before that I don't know. Over the years other states who play AFL have joined the league, two from New South Wales, two from SA and two from WA. WA is very one eyed when it comes to footy...

That was Barb Long's FB post yesterday, that Jeff is now with Jesus. Jeff's is the first public message to my account; he lead us to our wonderful PVA rep, and as a result helped us in so many more ways. We were fortunate to meet Jeff, Barb, and their beautiful daughter Kaylee two years in a...

Hi I was wondering do they have Make a wish foundation for adults with PALS? I contacted our person over the ALS Association here in our area and she gave me some list but most of them the numbers were no longer working. I would love to take my husband to California or Miami Florida those are...