My sister has ALS. She was diagnosed about 2 and 1/2 years ago. From everything I have read she may have anywhere from 6 months to 13 more years to live. The only part of her body that she can move is her left hand. I just finished reading "On Any Given Day" written by Joe Martin, a Bank of...
abuse
als
bed
bed sore
brother
children
clinic
diagnosed
family
health
home health care
hospice
last days
life
medical
medicare
meds
morphine
pain
paralyzed
quality of life
reading
treatment
I am curious about planningguy's Ibuprofen experiment; is the intention to see if it does make an impact on the twitches, cramps, and sensory issues? I recently moved and all the activity involved with that was taking me over the tolerance/functional level for my stiffness and soreness and I...
I wanted to start a new thread because I have to talk about incredible pain that I am experiencing and I need help.
I had the worst outbreak of whatever I have ever had in my life this last 3 weeks. I did not know how I was gong to survive, I am truly scared. My husband and i have been married...
My brother has ALS. The only strength he has is in his right hand and it gets weaker every week. He has had ALS for about 6 months. He's single and I have been providing care for him. He has a living will, has requested that no breathing machine and no feeding tube be used. I'm worn to a...
Hi all,
It has been a couple of months since my last post or even a "hi, how you doin'?" and I apologize for that. Since my dad moved in 2 months ago there hasn't been much time for anything other than him... which I knew would be the case, so no problem there. The reason for my post today is...
In lieu of some recent abuse by spammers, etc, the private messaging system, along with other nice to have's have been removed for registered users:
- ability to post signatures
- view the memberlist
- send and manage private messages
- create a blog
These features are enabled once you reach...
It's only been a little over a week since my mom went home to heaven. I know that's where she is and I know she's in a much better place. I also know that's where she wanted to be and she was ready. I honestly thought I was ready to let her go home.
But I am falling apart.
I can't...
my brother received a feeding tube 2 days ago. I am curious as to how long people have once they get a feeding tube. He can no longer talk and chokes all the time. We have been trying desperately to get him removed from his wife because of his daily abuse and neglect. APS has been called...
I would like to know if there anybody has had experience with an ALS patient abusing drugs. My sister was diagnosed a year ago with ALS. She has been abusing drugs for most of her life. Just prior to the diagnosis the drug use got worse. She is a patient at an ALS clinic. But this clinic...
This is a difficult subject to talk about and one that we have already heard about in this forum. Like most people here, my husband was very loving and caring even during the terrible times of loosing control of his body and his life. I know that not everyone with ALS reacts the same way. Fear...