Recent content by Razor

Lets say in 3 months I'm diagnosed, what am I meant to say haha I told you so I do have ALS?? what if its another disease that is crippling or terminal?? when your not feeling well you can win, you jut have to go with the ride..... After onset I thought it was a temporary issues, after 3 months...

After 12 months I'm trying to get my head around the fact that there are thousands of terminal illnesses, and no one is assured tomorrow. If you didn't have ALS but instead had terminal cancer, would it matter what the disease was called?? I've been laughed out of every doctors office for the...

I know exactly how you feel.... I've been making an effort to say off the forum but failed today. I think it might be good if you try the same. This place isn't good for people like us ALS or not...... After 12 months of the worsening symptoms there is 1 question, 2 answers and the same advice...

Hi Dame, I'm in the same position as you and believe I have ALS. I feel that weak in my legs and arms, yet everyone says its not ALS. Like me you have to stay strong for your children and wife. I also suffer anxiety and know how hard it can be.... Stay strong and reply if you want to talk. The...

Thanks Nikki, Really appreciate your advice. I am going to try and stay off this site.... If I'm ever back it will be because I'm diagnosed. I never forget what I've seen here or you and the other kind people that have helped me. I'm going to try and spend the best time I can with my kids...

My right forearm cramps and burns as i type...... seems like everything is progressing what ever it is. I'm really sorry you live with this and have seen so much of it around you..... The one thing Tillie said that sticks is if I have it there is nothing I can do.... I'm trying to live day by...

It makes no sense as my son 7 yrs old was pulling my foot down with all his weight and both hands and I could lift my foot back and forward 5 - 10 times in a row. I'm a big boy and can toe walk on both or each foot. He was using both hands but then I feel like I cant lift my foot of the gas...

I stop walking cause my legs and back and every other muscle feel like they cant go on. I don't trip or anything. 2 months after the legs the hands and arms started. Same thing feel like I'm lifting extra weight just to answer the phone. I can still carry heavy weights and boxes but not for as...

Nikki, Thank you for taking the time to reply. Next month marks 12 months and i don't know what to do. What I feel is like there are weights on my belt when I walk. Started of light and barely noticeable, but its like someone has added a little bit extra each week. My legs look normal and are...

How do I reply back to Nikki??? She doesn't have messages on her page...

Appreciate all your assistance and words Tillie. You responded to a post by bluedog about perceived vs clinical weakness.... it was an A or B type answer he was looking for. Most people said they felt both A & B.... A was clinical without feeling, B was feeling weak while doing tasks. I'm such a...

I cant see me just turning this around and being healthy again..... especially when I continue to get worse. I had a clean EMG at 5 months.... that's my only hope.

Tillie, I have had symptoms for 11 months now, Up until 3 weeks ago I would have said my symptoms were stable.... Just felt like slight Jello legs but I had strength when I needed it. My hands would feel stiff at times but were still very strong. Lately everything has changed.... I'm clumsy...

Hi Jmom, I'm 35 and have some similar symptoms and onset to you. Sometimes it can be hard to get some answers to the questions, which is understandable. I have had the leg give out feeling for 11 months now and know how you feel. Stickies and conversations seem contradictory so I'm not sure we...

Thanks for caring and checking up on me.... appreciate it.