Recent content by Megatron

I was on cpap for 20 years before being diagnosed with ALS 2 years ago. I became quite alarmed reading the above, as it appeared there is no sleep specialist or pulmonologist involved. Forgive me if I'm wrong, but you are playing with fire if you don't have a medical specialist establishing the...

Moreover, my neurologist told me last week that the new drug for familial ALS, toferson, has improved ALS symptoms for some patients!

Somewhere on here is a post by an ALS patient, who, like me, tried to buy through Lallemand. Lallemand's response was they are strictly a wholesale company, selling only to businesses. At one time there was a list on here of about 4 companies who did include HA-114. If you go back to the...

https://www.nature.com/articles/s41587-023-01798-5 Consistent with the University of Copenhagen study on transplanted healthy human glial cells outcompeting ageing and diseased human cells, University of Rochester has now claimed that glial cells that are simply younger in age will outcompete...

https://neurosciencenews.com/glia-transplant-disease-neurogenesis-23675/ Researchers at the University of Copenhagen have transplanted healthy human glial cells into the brains of mice into which they had previously injected unhealthy HUMAN brain cells. The healthy cells eradicated the...

Attached please find the response this date from MassGeneral/Healey ALS Platform Trial. It's frustrating to be excluded due to one or two factors. I am sorry to learn of your ALS diagnosis, and appreciate your interest in the HEALEY ALS Platform Trial. If you would like to learn more about what...

https://news.harvard.edu/gazette/story/2023/06/omega-3-fatty-acids-linked-with-slower-progression-of-als/#:~:text=Consuming%20omega%2D3%20fatty%20acids,study%20led%20by%20Harvard%20T.H. This is the link to the Harvard-drafted summary of their findings regarding alpha-linolenic acids, including...

While the Silverman Lab didn't have a current clinical trial for me to join for AKV9, they gave me a link to the Healey trial at Mass General. This will be a massive, multi-treatment platform trial with hundreds of trial participants. It's an entirely new approach to the global ALS problem...

https://akavatx.com/pipeline/#protein-aggregation-inhibitor The Silverman Lab at Northwestern University, and affiliated Akava Therapeutics, have been granted Orphan Drug status by the FDA for their compound, AKV9. Dr. Silverman essentially invented Lyrica. The team working on this is incredibly...