wes

Making time for yourself is a big deal for a CALS, between the difficulty in arranging it to the guilt you feel! I want to tell you CALS, it is SO important! Now, I have not done it as much as I should, but I do go out with friends at least once a month, and I just got back from a 4 day trip...

I had to face it, I have ALS! I knew before the Dr told this past Feb. that I had it. After-all it was the only real explanation, but until he said, it's ALS, I held out a small flicker of hope that it could be something else, anything else. But it wasn't to be, it was/is ALS and that's all...

Hi everyone, just wanted to let you know that my Father passed Jan. 3, 2013. :cry:He now can be with his family especailly my little brother Wes. Instead of flowers we requested that all donations be sent to the ALS Society of Canada. Thanks for being my life line all these years. Keeker

was reported by Western University in London It is called ARHGEF28 and from what I understand is found in the majority of ALS cases they looked at. The affected gene works to repair cells so if it is defective it would make sense as a cause of ALS. Hopefully this is good news. If this is a...

My goodness, it is December already! Here in the western US, We are getting lots of rain, will be heading East to all of you soon. It is a warm storm, no snow till about 7500 ft. We have flood warnings here, with the Truckee River expected to flood parts of Reno sometime tomorrow. We are...

Hello, I am a fist time poster. My symptoms started this past summer. First noticed easy leg fatigue bike riding with my husband. I just couldn't quite keep up with him as normal and had to keep shifting down as my legs would get so tired. Same leg fatigue was happening upon just doing 2 flights...

Sharing from a friend with a link to a post on my blog about him Dear Joanne would you please translate this to English? Its a column to have been underwritten wooden i will send to ILADS guys! borreliasyk I've been in 12 years. Like many others, I have not been believed that the Norwegian...

Feeling frustrated and upset and just need to vent. In short, my family has been talking with my brother about him coming to the west coast and spending Christmas with us. It would mean the world to my mom and lf course i want him to come as well. He has lived on the east coast for 18 years and...

My name is Alan I'm 40 years old and was diagnosed with bulbar onset ALS June 2011. Since that time I've been able to operate at a fairly high level. I continue to work(30 hours a week), and take part in my children's activities. The illness has resulted in me living in pain (neck pain)from the...

Program launched to help kids of ALS patients - Pittsburgh Post-Gazette