Dear All,
In a nutshell i have been experiencing various issues such as twitching, muscle weakness, Mild to moderate pain every now and then since last august, went in for a check up and have seen various doctors, they did my first EMG and NCV back in September last year which was clear and...
I managed to become entrapped in another adventure today. I don't see how my wife ever puts up with me:)
It started with a nice sunny day and my newly repair wheelchair sitting there with a full charge. What could possibly go wrong?
I left the house and wheeled toward Vail, which is about 7...
Steve has another round of pulmonary function testing tomorrow. It is supposed to decide whether we can go out west in five weeks on our trip. I hope so because we all need it and steve is really looking forward to it.
In a prior thread, I had asked if anybody had experience with the Zinger Wheelchair (zinger chair.com). While in Singapore, my husband (PLS for 11 yrs, walker dependent, with bulbar symptoms and slight upper extremity involvement) was able to try one. We ended up purchasing it. It, like any...
She was a brightly shining star
Team Trickett Wendler: Fewell to Fight ALS
Last night, March 18, at 9:15 Trickett passed at Waukesha Memorial Hospital with Tim beside her. She said last week that she hopes people will keep loving her, but hate ALS. When people asked her what they could do for...
One day a tourist came up to me and asked, "Where is Dune Din Florida?"
Told him, "I live here and I'm not familiar with Dune Din Florida."
He says, "Well... it's supposed to be right near here." (Central West Coast of Florida.)
I asked to see the piece of paper he had... it said Dunedin...
For the past 8 months my husband and I have planned to visit friends in Singapore, Cambodia, and Western Australia. MG’s PLS has progressed. He is walker dependent and extremely slow, and has resisted getting a wheelchair. He can eat but swallowing is slow. His speech varies but has been...
In her Golden Globes acceptance speech (Best Actress for Still Alice, a film about a woman with Alzheimer’s), Julianne Moore mentioned how one of her co-directors (they are a gay couple) has ALS. A Google search turned up this NYTimes article: The Makers of ‘Still Alice’ Have Their Own Story of...
Just completed pump trials, after the injection into the spine I felt great. I’m not just blowing smoke; I have not felt that good in many years. The spasticity was gone, going to have the pump installed after the Holiday’s. The VA did the test and they did my intake at the same time down in...