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I'm writing because I've frequented these forums in the past few months. I've read all the stickies, searched past posts, etc. I'm consumed with worry. Last spring, I bent wrong getting a toy for my son and something shifted in my back. I couldn't feel my leg for 3 months, and I had weakness...

I have had the wonderful opportunity to go skiing 4 times this season. The second time, which was on February 14 (or Valentine's Day), was really special. My wife accompanied me, of course. The ski instructors were Jim (tethered to the biski) and Amanda (controlled traffic, configured the...

Hi Everyone, I just got a new post up. It has a short video I shot, and some basic information on converting medications and supplements that are in pill form, to being tube ready. This post is not long, but, but there is more information on this subject in the "New to the Tube?" section...

Hi everyone, I've not been on much lately, and I wanted to share that I got a new low profile peg tube that does not have a balloon. The manufacturer does not state specifically anywhere in their literature (that I can find) how long it is supposed to last, just that it is potentially...

Dear all, My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...

I wrote a while back about the laryngospasm I had the misfortune of experiencing and found there are other ALS patients that also suffer with this. I've had 5 or 6 all total. None of which where as bad as the first. With the subsequent spasms I could at least get a little air in and they...

Hey guys , my english bad so please ignore it as possible. (Age:25 Sex :Male) There are weird things happening to my body since around mid of this august.Atleast i realize them(dont know). {First there was a uncontrollable(not small movement,i cant make that with same frequency) movement on...

I don't contribute much anymore but I have read some threads about clonus here and elsewhere. Clonus does not occur on it's own. It has to be triggered in some manner, like a strike on a reflex point. There is a You Tube video demonstrating clonus... any Neurologist who may have watched it is...

We just got my mom a power wheelchair from the ALS loaner closet today and it takes some adjusting to! She doesn't steer herself so my sister and I do it for her. The steering reminds me of those car racing video games on the xbox (which I suck at hah!). Anyway tonight when we were putting her...

I am a 22 year old male. About a month ago I got constant twitching in my feet. Now I have twitching in my feet, calfs and in my arms. My left thumb now eye tired playing video games and my left pointer finger feels like it's jammed sometimes. I don't notice any athoprhy. Do these symptoms...