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Hi Everyone, It's been a while since I've last posted and not a lot has changed since (diagnosis wise). I really don't want to bother you with a huge list of symptoms, nor do I want to come across like a huge worry wort, when my concerns are many of your realities. So I'll try and keep it as...

Hey.,i was having problems since previous summer and ive seen neurologist at january.I have atrophy , weakness, fasc's but everthing was clean so doctor told me to come later again.thats my short summary. The point is , i guess its started around march-may, i realise that my tongue is a bit...

I saw this a few months back: Harvard Scientists: ALS, SMA Cure Found While Schizophrenia Treatment Is Uncertain [Video] : College : University Herald Does anyone know more info about the above?

This is not about ALS, but it could be. I just felt like sharing it and hope someone finds it useful and meaningful. Hospice at age 4 - CNN.com@@AMEPARAM@@video...

I'm 23 and I'm a female. Overall healthy, no diagnoses of anything. About 3 years ago I noticed a twitch in my right pinky finger. It has been on and off since. Sometimes it will do it all day for weeks then I'll go a few days without noticing it, then it's back again. I've also noticed...

I got a call from the doctor at the clinic today. She reported the results were back from genetic testing. My wife has the defective C9orf72 gene. I have so many thoughts running through my head right now. I could create one big scatterbrained, disjointed post. It's probably best to tackle one...

I watched a YouTube video on CRISPR & it sounded amazing but seemed it'll be developed very far in the future. Glad to see it's in the works now...

i'm 21 years old. (I learned english by my own, so i apologize for any mistake) 2 months ago i had an Arrhythmia for like 4 days. After that, i had a problem in my neck, it was hard stand my head with my neck, and that came with Dizziness (it stoped after a week) Now, i've had fasciculation...

Hi there, I write this post looking for some guidance with respect to an upcoming appointment with a neurologist. I want to ensure I get out of the appointment all I need to. I very much appreciate anyone who takes the time to reply. Rather than write an essay on the 9 week history of my...

28 year old male Diagnosed with anxiety disorder at 14 For the last few days I've been experiencing twitching in my right thumb, in the area between thumb and index finger. It's quite noticeable. It has happened before but this time I Googled it and came across ALS... I know, never Google...