vent

  1. B

    My husband cried today

    For the first time since his diagnosis in June, my husband broke down. He has rapidly lost his ability to speak, and he was trying to tell me something that I just couldn't grasp. He tried to write it down but could only write one word that made no sense to me at all. He can't put his...
    • beachgirl
    • Thread
    • ability brother cell clinic communication crying diagnosis frustrated heart husband peg story vent
    • Replies: 12
    • Forum: Current caregivers
  2. L

    Eating Food with Vent/Trach

    My boyfriend is newly on vent/trach. At the hospital we were told by an MD that he will not be allowed to eat or drink again (he has a feeding tube). At the L-Tach rehab the speech therapist gave him mashed potatoes and he aspirated them and then got pneumonia. He eventually went to...
  3. L

    Life Expectancy After Going on Ventilator?

    I am a caregiver to my longtime boyfriend. He was diagnosed January 2017 with ALS. The disease has been very aggressive and he is now on a vent. He is in rehab and we are working on getting him home (not easy). I'm wondering about life expectancy???
  4. K

    Claiming to be short of breath while on trach and vent

    Hi guys, My dad got his tracheotomy and ventilator a little over 2 weeks ago. When we were at the hospital, he was doing fine adapting to it. His heart rate was around 70-90. However, we just moved to a nursing facility that has a subacute section and the first week, he was doing fine. But in...
    • kleptoice
    • Thread
    • anxiety cold dad frustrated heart helpful hours medicine night nurses oxygen respiratory student trach tracheotomy vent ventilator worried worry
    • Replies: 13
    • Forum: General discussion about ALS/MND
  5. P

    Coping, Just about.

    Hi, I am new to this forum. My Husband Steve has ALS, diagnosed 1/02/2015. Steve had a trach and feeding tube fitted in May. Just about feeling like I am getting my head around it over the last few months. The care involved is incredibly time-consuming and tiring. I feel trapped at times, feel...
    • pojepo
    • Thread
    • als back bed coping cough assist diagnosed feeding feeding tube fingers go away guilt hours insurance life love meds money reading story suction trach vent work
    • Replies: 3
    • Forum: Current caregivers
  6. C

    Priorities??

    Hello everyone, I haven't posted very much, but I need to vent a little today. My BF was officially diagnosed with ALS Dec 2016, but had symptoms for at least a year prior to that. Now that he is becoming less mobile, I find it very frustrating that he is not taking steps to make...
    • Chewy302
    • Thread
    • als denial diagnosed diagnosis family finances symptoms vent worry
    • Replies: 3
    • Forum: Current caregivers
  7. S

    Student life vs Caregiver life

    Hi Guys! This is my first time ever on a forum so I would definitely appreciate any kind of guidance! So what brings me here...I'm a 23 y/o caregiver to my 51 y/o mother. She's been a PALS for about 4 years now. There are 6 of us in the family but my little sister and I are the main...
    • studentndaughter
    • Thread
    • advice angry bipap caregiver caregivers caregiving dad family heart life nurses research student time to s vent wanted work young
    • Replies: 13
    • Forum: Current caregivers
  8. G

    Supplies to give away...

    I have numerous supplies to give away... -Foam Trach Ties -Shiley 6 inner cannulas -14 gauge suction catheters -Suction tubing. -Sterile gauze trays -Trach care kids...so many trach care kits -A humidifier for Trilogy vent w/several reservoirs
  9. WendyWooG

    In never rainsbut it pours

    In need of a vent at the moment. Mostly because I am in the wrong and know it. I have had a lump on my breast for a few months, my husband found out at the weekend and insisted on seeing the doctor, the doctor was very frank and said she thinks it's probably breast cancer and is trying to get a...
  10. N

    Struggling

    Sometimes I even hate to do a rant like this because I feel like I'm whining. It's taken me 24 hours to get up the courage to put pen to paper, as it were. Yes, I'm struggling. The why has multiple reasons. These are on no particular order. 1) sleep. Hasn't been going well. Mostly due to the...
    • Narrowminded
    • Thread
    • back disability frustrated hours kids life lift locked in meds money rant sleep speech speech device vent work wrong
    • Replies: 1,547
    • Forum: Current caregivers
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