swallowing

  1. ReginaS

    9 months past diagnosis

    Hi all, My partner was diagnosed w. ALS in February (2018). He might have noticed the first signs in Oct. 2017 in his right foot. He got a leg brace for drop foot. His right arm/had and foot/leg are very weak. Now he has significant pain in his right wrist. I got him a brace and it's best if...
  2. J

    Numbness, muscle twitching, and no diagnosis? Read this.

    This post is for those who are currently experiencing numbness and muscle twitching and, like me, tend to automatically assume the worst case scenario. I felt compelled to write this a year and a half after first experiencing neurological issues because #1, it seems that a lot of folks who...
  3. L

    Get a good neurologist !!

    I know my previous thread was closed. I only sent this to say I have to start all over because the neurologist I seen completely lied on my evaluation. So much that when my PCP seen me, He couldn't recognize that this neurologist didn't see all the atrophy, difficulties breathing and swallowing...
  4. S

    Could this be ALS please help

    Hi everyone, I’m here looking for some advice I’m hoping you can help me please. Here’s my story:- July 2016 - I had my baby boy by c-section, when they did my spinal I had a pain shoot down my right leg. Once he was here I had bad cramping and spasms in that leg this was continuous until about...
  5. S

    27 Year Old Male please read

    Hi y’all thank you for taking the time out to read this ... I have been living in fear for almost 3 years and I feel like I have to post here now .. My worries Started back 2.5 years ago when I had body wide twitching.. since then I started to notice how sometimes I slur a word or 2.. Since that...
  6. S

    Rough time, symptomatic and looking for some help.

    *after writing this, I see I am just regergitating all the symptoms I have been having and it lead to a long post. My intention is to let you know what ALL is going on when we all know there is probably just specific symptoms that I am focusing on for this forum.* Thanks for reading this long...
  7. T

    Bulbar als?

    Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
  8. E

    Speech Therapy for PLS

    I posted this on the general forum, but thought it was more appropiate for this site... Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is...
  9. E

    Speech Therapy for PLS

    Hello, My father was diagnosed with PLS a few months ago and has been experienced symptoms for more than 2 years. I wanted to ask you all about experiences with speech therapy. My father's speech is unaffected yet and his lung function and breathing are perfect as by the latest tests, done...
  10. Trippy

    Nuedexta as needed?

    Does anyone take this drug as needed, for example when planning to be around people, etc. or take it on a different schedule than manufacturer recommendations? I did a search but couldn’t find any information. I started a half dose (one pill) last week and within 24 hours noticed a definite...
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