Lately, I've noticed a difference when I swallow. I'm limb onset and have not had any problems with swallowing or eating. Now, at times, it kind of feels mushy when I swallow. Especially in the morning.
And, I've had several occasions where saliva will just slide down the wrong pipe if I'm...
I was recently told by my internist that I most likely have Myasthenia Gravis, ALS, or something similar. She is not thrilled with my care thus far by my current neurologist and spoke with the chief of Neurology at the University of Utah, who specializes in ALS, MG, EMG, etc. He has agreed to...
Everyone, thanks for the continued sage advice on all topics. Hubby dx in 2013; now wheelchair/recliner bound, trilogy non-stop. Having some what I have deemed to be panic attacks. Comes on if he thinks he's not getting enough air or he gets upset about something. Neuro has prescribed Xanax...
My dad was diagnosed in May last year. Within 3 months he was in a wheelchair and 3 months after that his speech started to go. He is now in the end stage - no speech, no arms/legs, and unable to swallow. His FVC was 24% in January.
He had been using the trilogy mask at night, but over the last...
Hi people, my name is Paul and nice to meet you all thank you for allowing me into your community.
May I please seek advice before I head to a Neuro...
For the past 3-4 months, I have been getting crazy crazy twitches in my left arm and leg. When I lay on my bed the amount of twitching that is...
So... I have only posted once after my dad was diagnosed last year. Since that time he and my mom moved in with me. (last July) He has a feeding tube and has been hospitalized 3 times with a variety of issues. He is on a trilogy ventilator with a noninvasive mask.
He has lost all speech and has...
Hi,
I am a 22 years old and for the last 4 months or so, I have had the feeling of phlegm stuff in my throat. I am usually able to swallow it but I have had to clear my throat fairly regularly.
Initially I was not concerned about this but after awhile I looked at my tongue and noticed that...
my last thread was closed
I have been going round and round with notorious twitches and feet achy weirdness for a while below is time lin
nov16 bilateral feet feel strange
jan 17 emg diagnosed with neuropathy with normal ncv
may17 emg diagnosed with sensimotor poloneurapthy with normal ncv
aug...
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Hey everyone. So a few years ago I was convinced I had ALS, and one of the only things that calmed me down was coming to forums like this and reading about other people's experiences. Although intellectually I knew it was most likely my anxiety causing the symptoms, it's hard not to panic when...
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For approx 4 months I have had increasing problems eating. Manipulating food around my mouth is hard work and I am frequently biting my tongue or mouth. Dry food eg bread is sometimes too difficult to swallow. My voice is slurring, also because I cannot seem to put my tongue in the right...