oxygen

I was under the impression from reading on this forum that breathing problem in ALS don't affect oxygen saturation, only CO2. Was at the hospital for several hours today to deal with a port issue. The nurse noticed my oxygen saturation would go down to the 80s (lowest was 81) then a few...

Yesterday my RT from from the local oxygen and Trilogy supplier, went to exchange a refurbished Trilogy 100 for mine. Mine has over the number of hours before overall. After the " new ventilator" was fastened to the back of my wheelchair and the settings were being input to match mine, I asked...

Hi all, I am not a Dr. and I don’t play one on TV. I’m just a CALS who pays very close attention to what meds my PALS is on and how they affect him. I want to relate something I’ve learned so that you may be aware of a possible side effect of this medication. Brian has been on Robinul for...

I’m back after nearly two years of visiting the site. I was trying to move on but my symptoms have never left. I have weak hands that show atrophy, my feet have lost muscle. My arms have have lost muscle, are weak, and clearly show atrophy on my shoulders . I pretty much have wobbly muscles...

My mom was diagnosed in February 2018 with advanced ALS. She hasn't lost the ability to speak, move, eat or drink but is on oxygen and has hospice. Is it too late for any type of treatment or clinical trials/drugs?

Hi - My name is Michelle and my sister was diagnosed with ALS April 2015. She seems to have got it pretty bad and drawn out. At first it was just her tripping a lot, then she would just fall and couldn't get up, couldn't get off the toilet or out of bed without help. As it got worst and worst...

Hi all, my name is Mari and I'm Finnish. I lost my mom to ALS on Nov 17th. She had an Alzheimers diagnosis on July 2017 as we took her to memory tests as she didnt seem to remember everything as normal and did not cook or do gardening anymore nor cleaned the house as usual. She was diagnosed...

It's hard to believe that a month ago my dad was still walking, eating and speaking normally, using his left hand/arm. His progression since then has been astounding. He now has a wheelchair, hospital bed, lift, bi-pap, oxygen to help asthma, cough assist, suction, morphine...the list goes on...

Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...

Hello I have been reading several threads on the site since my friend was diagnosed with ALS 5 months ago. First I want to say this site has been a wealth of information and I am grateful for all here who answer questions. I was hoping to get some information on the Bipap vs the trilogy. My...