neurology

Hi all, my name is Mari and I'm Finnish. I lost my mom to ALS on Nov 17th. She had an Alzheimers diagnosis on July 2017 as we took her to memory tests as she didnt seem to remember everything as normal and did not cook or do gardening anymore nor cleaned the house as usual. She was diagnosed...

Neurology is a very fine field of diagnosis. My respects to the those in the field. My actual diagnosis is HIV Associated Vacuolar Myelopathy. It runs nearly the same course of ALS, but is a bit faster. It's been over three decades of being HIV positive. I held fast and hard in keeping my...

Dear all I'm in a really tough spot and have been for about 3 months. Please can I run my symptoms by you to see if anyone can relate to my condition and progress. I have felt a bit off since the beginning of the year like a growing fatigue, but I put this down to having a 1 year old (now...

I have been having twitching in my left lower calf for a week now. No obvious weakness. It does not stop unless I am moving around. It goes on 24/7. All my electrolytes came back normal. We are currently waiting on a CKMB and I have a referral to neurology. In the meantime I have so much...

Hello, my PALS was diagnosed in May and today had his 2nd ALS clinic visit at Texas Neurology. I’m just not understanding the respiratory numbers. His first visit in July the respiratory therapist said his MIP was -30 and MEP was 93. Today she said he was at -11 for MIP and 48 for MEP. No one...

Well in August I was asked to be in a study for PLS. I was diagnosed 4 years ago. Their are 3 people from TX. Neurology in Dallas that are part of the study. Columbia Univ. is heading up the study. There are participants all over the USA , they are trying, at this point to get base line...

Hard to do sometimes but it is important to plan and very important to have the information somewhere people can find it Backup Plans: Sometimes family caregivers die before their p... : Neurology Now

Hello All, I apologize up front for having to start a new thread as my previous one got locked due to inactivity. For those who followed my initial thread, I've been dealing with a variety of symptoms since at least late March 2017. I am a 41 year old male. As a patient who uses the VA...

Hi everyone, hope you guys had great long weekend :) My mom diagnosed as ALS on 8/2/17 and its been a month now. Her symptom started on left leg and now her right leg seems becoming just like her left leg. Recently, my mom told me that she started to have back muscle twitching and worries...

Hey everyone, I've done a tremendous amount of reading on this forum. I'm fairly confident my symptoms DON'T line up with ALS, but was looking for some reassurance as my neurology appointment is a few months. I will provide all information in point form with some words capitalized as I think...