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Hi everyone. Things are gong down hill at a rapid pace. Today hospice had the SW come in for the "talk". My father's bowels appear to not be working and he is constantly constipated. Nothing they have done has resolved the issue and they won't do anything more "aggressive" than an enema...

I think I'm at the point that I need to buy my own lift. Does anyone have a lift you are fond of or that is worked out well for you. I have a manual lift on loan from the loaner closet, but I'm able to buy one and free that up for the people who really need it. I've looked at Hoyer, direct...

Calling all ERICA Eye Response Users. A friend has been an ERICA user since 2008 and has found it to be an invaluable tool used daily for hours on end. He utilized all the components that the Lifemate software offered, including environmental control. When his system became inoperable about a...

To my surprise, my PWC once again has a problem. When I tried to charge it Thursday night, the red "fault" led lit up on the charger. The chair will not take any charge at all with that charger. Of course this happened at the start of our July 4 holiday, for which I had big wheelchair plans:(...

I managed to become entrapped in another adventure today. I don't see how my wife ever puts up with me:) It started with a nice sunny day and my newly repair wheelchair sitting there with a full charge. What could possibly go wrong? I left the house and wheeled toward Vail, which is about 7...

My wife and I have planned a few trips while I can still travel. The first was to the Grand Canyon. We spent a week on the road in our new-to-us wheelchair van. We had a great time! Here is a bit of a report on the trip. We drove to Blanding, Utah, where we spent the first night. The next...

This diagnosis is worse than having a bucket of ice water tipped over your head. The detail of this sticky can be summarized by these steps which are not necessarily in the same order for everyone: 1. Absorb the shock 2. Find support systems 3. Tell people as appropriate 4. Put legal affairs in...

We had an ALS Clinic visit, yesterday. Our son Jim, age 28, was down from Brooklyn and joined us. Our last Clinic was in November... so we've been 4 months between visits. Yesterday's Clinic was a makeup for one that was cancelled due to snow in February. Darcey has been having some pain in...

The last year has been filled with many odd and unanswered things. I am into bodybuilding as a hobby. About 8 months ago I started noticing my form was off no matter how hard I tried I couldn't get the left side to match the right. Fast forward a few months, fatigued during normal activites, out...

Initially it didn't seem like much, a bipap here, a peg tube there. Today a physical therapist did a home eval and based on what he saw recommended ramps, hospital bed, new flooring, new manual and power wheelchair, lift for van, new trilogy and cough assist machine, commode chairs, shower...