improvement

  1. C

    Bulbar & Trilogy Mask.

    I now use the Trilogy unit all night and the better part of the day, most days. My problem... the extended use of the unit, drys my throat to a near desert like condition. Because I can't form a seal with my lips, the moving air escapes through my mouth. After a handful of hours (4 or 5)...
  2. dkcarl62

    Bipap and speech

    Has anyone had a noticeable improvement in speech with using a bipap? Has your voice volume improved, or are you less tired out talking, or? Thanks, Deb
  3. G

    FDA-approved anti-epileptic drug perampanel is able to prevent the progression of ALS

    For sporadic ALS. Experimental results showed the drug was able to prevent the death of motor neurons and normalized the localization of TDP-43 with the cells. Moreover, long-term administration of the drug in mice also led to visible improvement of motor dysfunction in the treated mice, as...
  4. N

    Something to Share

    Hi All, I want to share something that has been a help to us. I first want to say this is not meant to be medical advise. I just want to let you know something I've tried and how it has worked out for us. For several years I've been using Oil of Oregano and garlic whenever I feel a cold...
  5. KimT

    Breathing Exercises and CRAMPS in diaphragm

    I've been breath stacking but bought a gizmo on Amazon (very cheap) that measures your inspiratory capacity. It has % for age. I was excited because on my PFT I had pretty bad lung capacity. On this gizmo it was normal. I know it's probably off but I decided, at least, it would show relative...
  6. LizF

    Newly diagnosed, atypical presentation, looking for similar cases

    Hello, I was dx with ALS last week, after much testing and an earlier diagnosis of polymyositis. I have been told my case is atypical. My first symptom was leg weakness, which began in thighs before becoming distal, and with a dx of polymyositis had been on a run of Prednisone, on which I...
  7. D

    Is this recovery from MND????

    i everyone My Dad has been recently diagnosed with possible MND ( its been a little more than a month). As per The Dr. it is currently effecting lower Motor Neurons Only- Both hands majorly. He has problem holding spoon buttoning shirt, lifting arms, using car keys etc. Also there is major...
  8. T

    Medtronic Baclofen Pump

    Hi All, I'm not a great contributor to this site, but I truly appreciate those of you who are! You're created a supportive community that's both informative and kind, as well as a forum that often tickles the funny bone! Many thanks! Now it's my turn to make an offering. I'm finally ready to...
  9. scaredwifetx

    Would like opinions and or advice on Lunasin trial

    Hello everyone! I haven't posted much lately due to work and a very busy schedule. However, I do value the knowledge and opinions of everyone here. I need some advice. Several months ago I responded to Dr Bedlack on something he had on the net. I sent him an email and was amazed that he replied...
  10. R

    Mom just diagnosed

    My mom was diagnosed this past Saturday 04/02/2016 with ALS. This is her story On October of 2015 it was discovered she had thyroid cancer and her thyroid was removed and afterwards was treated with iodine radiation a low dose they were successful in getting all the cancer when she went into...
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