Its been a while since I've posted on the forum and lots has happen. I absolutely hate ALS!!!!!! This has been so brutal on us both to the point i cant even care for him anymore i have hurt my back so bad i can barely walk and move. We've called in hospice to help. It has been 1yr since this...
At the risk of being told to grow a pair, i have to ask about abuse and neglect.
My wife/cals has made it clear that she hates taking care of me. I try to ask politely when i need something and i always wait patiently while waiting for her to get to my requesr...or i at least ACT patient. I...
I have a Hoyer lift here that hospice provided. Now that I need it they came to show me how to use it, but they said I can not use it alone?? It only me to care for PAL. I asked why do I have it. They said the CNAs would use it when they come in to give him a bath. I see a lot of you here...
Hi everyone, I live in Wesley Chapel, FL. I have the following items for free to anyone who would like them. You would need to pick the items up.
Power wheelchair and charger with attendant control and trilogy bracket installed
New manual hoyer lift
new electric hoyer lift
shower wheelchair...
Electric lift with extra battery and sling - eliminates use of hoyer lift [mod note: standing lifts will only work for some PALS] and is 4 months old. Was 10k - willing to sell cheap for patient in need. Dad used this to maintain dignity until last few weeks of disease.
Hello All,
We're planning a move home for my mother. She's currently at a nursing home. The nursing home can't/won't keep up with her needs, and we can't afford to pay them AND pay a private caretaker to be by her side at the nursing home. So, we're planning to take her home for care...
advice
age
als
bipap
caretakers
cough assist
dad
electric wheelchair
hospice
hoyerhoyer lift
lift
money
night
nursing home
planning
questions
speech
suction
wheelchair
work
I need one and our primary will order one at which time we will receive training at the VA. My neighbor across the street has been great about running over but I hate to impose on neighbors.
Michelle in Texas
Hello all -
After a year of finding answers and feeling supported as a guest I have finally decided to create my own account. My sister, who was diagnosed with ALS in December 2014, moved from her community, across states, to live with me in March 2015. It began as problems with her shoulders...
Hello to all.
Have any of you tackled the long journey of ALS without a lift?
We are surely at the point where a lift would normally be considered
and/or necessary, but we are reluctant.
I am still able to move my pALS around with transfer boards and a
scooter. He has no lower body strength...
Our PALs has been living with ALS for almost 8 years --- he is now to the point where is upper body, neck and breathing are the most affected. His legs still supported him but he had to move slowly.
While caring for him on Friday, he got up to go to the bathroom. I walked him in, helped drop...
age
alsa
bipap
brain
brain injury
breathing
chair
children
dad
exhaustion
family
fell
hip
hoyerhoyer lift
insurance
life
lift
pals
scared
sleep
transfers
wrist