hospice

  1. S

    Do you know anybody who did VSED (voluntary stop eating & drinking)

    Hello, I am a CALS--my mother was diagnosed with ALS about 6 weeks ago. She has limb-onset ALS and no longer has the use of her arms. Her legs are getting weaker, so they will go next. Her breathing /swallowing is great. Her respiratory therapist said her respiratory function was "off the...
  2. L

    My Dad

    So... I have only posted once after my dad was diagnosed last year. Since that time he and my mom moved in with me. (last July) He has a feeding tube and has been hospitalized 3 times with a variety of issues. He is on a trilogy ventilator with a noninvasive mask. He has lost all speech and has...
    • LeslieR
    • Thread
    • dad diagnosed feeding feeding tube hospice morphine night speech swallow trach trilogy ventilator
    • Replies: 25
    • Forum: Current caregivers
  3. M

    Too late for trials?

    My mom was diagnosed in February 2018 with advanced ALS. She hasn't lost the ability to speak, move, eat or drink but is on oxygen and has hospice. Is it too late for any type of treatment or clinical trials/drugs?
  4. K

    hospice and trilogy

    I'm looking into hospice. I need a trilogy 24\7 ahnd would have to switch companies. Nervous about this. Has anyone had this experience \
  5. M

    Mom doesn't have much time left, her husband not doing anything

    My mom was diagnosed with advanced ALS this past Saturday in Tennessee. I drove up from Alabama. My dad drove down from Michigan. By the time I was able to get here they had already sent her home. I knew her husband is an alcoholic but not to the point he can't care for her. My mom isn't...
    • mdaniela
    • Thread
    • als back bed chair dad diagnosed feeding feeding tube hospice husband mad running wanted
    • Replies: 3
    • Forum: Newly diagnosed
  6. N

    Allergic to morphine

    My honey decided it was time to go on hospice care last week, All was going well, a few new meds to help with the respiratory distress and a nurse a phone call away! Very nice until Sunday morning, I realized his lips had swollen over night till they looked like Mik Jaggars' lips, One of his...
    • Nealbob14
    • Thread
    • allergy morphine cough assist hospice ideas medicine meds morphine night respiratory trilogy
    • Replies: 2
    • Forum: Current caregivers
  7. tripete

    Woke Up - Air Hunger

    This morning after getting up I felt very anxious and very quick shallow breathing. I was crying over nothing. I eventualy contacted my Hospice nurse and she first had me take adrovin (which did nothing) and now morphine, The panicy air hunger is gone but the breathing is still vry difficult. My...
  8. A

    Màking hospice decision

    We met with a hospice provider yesterday and I am struggling with the decision to sign on. Really the only reason I am considering it is to get the morphine in the house to help with a peaceful pasśing, not that I'm ready for that quiet yet. I do not want to give up my neurologist and RT either...
  9. C

    Started Hospice and have questions

    I went for my clinic visit a couple weeks ago and the neurologist suggested hospice. I've lost 18 lbs in 3 months. I knew I lost some weight but not that much. My FVC was 39, down from 41 three months ago. Both my husband question the accuracy of this reading as we've both noticed a...
    • CarolSue
    • Thread
    • back breathing clinic decline fvc gallbladder hospice morphine neurologist pain questions reading respiratory test tongue
    • Replies: 8
    • Forum: General discussion about ALS/MND
  10. C

    Hospice Care Meeting

    Hospice has requested a care meeting for this upcoming Monday. Any ideas on what they go over during a care meeting or things I should have prepared for it???? Any input would be greatly appreciated.
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