hospice

  1. M

    Too late for trials?

    My mom was diagnosed in February 2018 with advanced ALS. She hasn't lost the ability to speak, move, eat or drink but is on oxygen and has hospice. Is it too late for any type of treatment or clinical trials/drugs?
  2. K

    hospice and trilogy

    I'm looking into hospice. I need a trilogy 24\7 ahnd would have to switch companies. Nervous about this. Has anyone had this experience \
  3. M

    Mom doesn't have much time left, her husband not doing anything

    My mom was diagnosed with advanced ALS this past Saturday in Tennessee. I drove up from Alabama. My dad drove down from Michigan. By the time I was able to get here they had already sent her home. I knew her husband is an alcoholic but not to the point he can't care for her. My mom isn't...
  4. N

    Allergic to morphine

    My honey decided it was time to go on hospice care last week, All was going well, a few new meds to help with the respiratory distress and a nurse a phone call away! Very nice until Sunday morning, I realized his lips had swollen over night till they looked like Mik Jaggars' lips, One of his...
  5. tripete

    Woke Up - Air Hunger

    This morning after getting up I felt very anxious and very quick shallow breathing. I was crying over nothing. I eventualy contacted my Hospice nurse and she first had me take adrovin (which did nothing) and now morphine, The panicy air hunger is gone but the breathing is still vry difficult. My...
  6. A

    Màking hospice decision

    We met with a hospice provider yesterday and I am struggling with the decision to sign on. Really the only reason I am considering it is to get the morphine in the house to help with a peaceful pasśing, not that I'm ready for that quiet yet. I do not want to give up my neurologist and RT either...
  7. C

    Started Hospice and have questions

    I went for my clinic visit a couple weeks ago and the neurologist suggested hospice. I've lost 18 lbs in 3 months. I knew I lost some weight but not that much. My FVC was 39, down from 41 three months ago. Both my husband question the accuracy of this reading as we've both noticed a...
  8. C

    Hospice Care Meeting

    Hospice has requested a care meeting for this upcoming Monday. Any ideas on what they go over during a care meeting or things I should have prepared for it???? Any input would be greatly appreciated.
  9. worrieddaughter77

    beginning of respiratory failure?

    I can't handle it... My dad has been coughing for about 2 weeks now. He starts at about 7pm and it continues on until about 2am. It's so difficult for him and the rest of us to sleep. And I just don't know what to do!!! It seems that the reason for his cough is a partial collapse of his left...
  10. C

    Rapid Decline

    I'm afraid we are getting closer to the end. Since Hurricane Irma, my dad has just gone downhill extremely quickly. He can no longer hold his head up. We have him in hospice and he is on the "cocktail." These past 2 weeks he has begun sleeping constantly, waking up for brief moments. (This...
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