hearing

I was fast tracked on this medical journey 1/28/16 after finally seeing a doctor for my chronic nasal regurgitation... turns out it's a lot more than a quirk or nuisance! Now I am on a puréed diet because I have neurogenic dsyphagia with atrophy, dysphonia & dysarthria (among other things). For...

I have noticed a few changes with Steve regarding his sleep and his breathing. Today I had to insist that he actually sit down and talk to me. Apparently, the reason he is waking up so much at night is because he gets sinus congested and can't breath through his nose. He is on the Trilogy. We...

A few days ago, Tom told me he woke up and didn't know where he was. I didn't pay much attention because he has done this in the past...long before ALS. But then Friday night he woke me up and asked me if I heard music. I did not and my hearing is much better than his. Yesterday morning he tried...

When it gets to the point that the PALS can't move at all do they make any sounds at all? Like grunts or laughs or anything? Can they control blinking? Next question- I am always hearing about how people plateau for awhile. Is it possible to never plateau with ALS? In November my mom was have...

I find myself looking for others looking who might be going through similar experiences. Thank you for letting me come here and share! Any suggestions, hearing ideas, advice is more than welcome. I am only 9 months into this and we are not sure what the "this" is yet. But I find myself...

Can someone explain this process to me? Is there a special device I need or (please excuse my ignorance here...) can this be done with a special app on his iphone? If it is a device, do I buy it on my own or is this something the Dr would write a script for? Chad is still accepting a lot of this...

Greetings; I have had this issue for quite a while, but it seems to be getting worse and more persistent. When it started I only noticed it when using earplugs, but lately it goes on whenever I have that side of my head on a pillow, or even maybe leaning my head on my hand or something. I...

So I wanted to post this because I've been hearing about and reading about detoxing as a way to slow progression. On the site healingals.org there are a number of stories of PALS who claim to have reversed als. I don't know how many of those have a validated dx, although I do know that after...

Sorry to ask, MND qld came out and want me to get eye gaze now (it's free via them) so I can learn in time due to my speech & difficulties now using the iPad. I'm stuck in indecision city ! I prefer my iPad . I have searched threads and apple about the switches, but they were too technical or...

Hello My father was diagnosed with ALS in 2013. His symptoms were very subtle and started off with thumb numbness. When we tried everything from surgeries to physio-therapies we were still hoping that the numbness had something to do with stiffening of the nerves or muscles. I am from Nepal...