dad

My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith. Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly...

Hi All, My dad was officially diagnosed with als in March 2018 although he was exhibiting signs as early as May 2017. I remember going to the neurologist for the diagnosis and my dad walked there. Slowly but he walked. Now he can barely walk in a walker. His left side is much stronger than his...

Hey everyone. I've never posted on a forum before such as this one, although I've long been someone that often browses to see what others are going through and that people have to say. But I'm genuinely at my wits end and don't know how to cope any longer, so perhaps just discussing my issue a...

My Mom had a call from a medical imaging center yesterday confirming my Dad’s MRI appt. She knew nothing about the appt and when asked who booked it they said it was requested by my Dad’s neurologist. Of course we can’t get a hold of his neurologist to ask why... Does anyone have an idea as...

We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...

Hello, We are wondering whether to do genetic testing... There have been no more known cases of ALS in our family, apart from my recently diagnosed father. However, a cousin of my dad had MSA and another cousin is now being seen by neurologists with suspected Parkinson's disease. On the other...

My MIL started showing symptoms in June 2018. It started with back pain and slurred speech and progressed from there. In August she needed a cane to walk, and by September a walker. We had began seeking answers from her PCP and a Neurologist who couldn't give us any answers. The only thing...

Hi all, I'm a 25 year old male from Detroit and my dad is 53 years old. This post is about my dad. Background info: my dad has plenty of other health problems that make weightlifting harder for him, including arthritis in his knees, a bone spur in his back which causes a lot of pain and some...

My Dad got his tube in early December. We've tried both gravity and now pump feeding. He is just not comfortable. He can't get down more than 3 cans a day without being miserable. We've tried the first 1.5 calorie formula, a higher 2.0 calorie formula, and a 1.5 with lower fiber. We are...

First off, thanks to everyone on these forums. I have been visiting a bit as I'm quite convinced my girlfriend of 10 years has developed this terrible disease. A year ago today we were on our snowmobiles in northern Maine... it seems impossible that we are where we are right now. Sharon...