cpap

My dearest friend was diagnosed with ALS on Jan 11. She has bulbar presentation. Speech is slurred, swallowing troubles at times, voice has changed. First sleep study and nocturnal oximetry are done, showing obstructive sleep apnea. Some fasiculations. Occasional lyrangospasm are really scary...

Hello, i started on Bipap December 19. I researched masks before hand and got the Quatro Fx as everyone seemed to like it. It leaks like crazy. My face was measured and fitted w the FX by a respiratory therapist at Synbius Medical. I called them and they sent out very thin cotton liners, helped...

Hey BiPap users, i was having a really hard time adjusting to my BiPap mask (quatro FX/with liners). I have always been a side/tummy sleeper and move around alot at night wich is not conducive to using a mask. I got the above named pillow and love it. mask leaks are greatly reduced! Finally...

I'm just wondering because my dad does not want to vent. During the day, someone will be with him, but at night is it possible that he could pass away without anyone ever knowing?

Does anyone have a doctor or clinic that they would recommend to someone who has conflicting diagnosis of ALS, spinal injury or other possible disease? I've been to 3 neurologists and all three say something different. In the meantime, I'm getting worse and now having trouble breathing. I'm in...

My father has been prescribed a Cpap to help with his breathing at night and for his severe sleep apnea. Unfortunately, he is too scared to use it because he has lost the use of his arms. If he wants/needs to take it off, he can't. Also, he constantly needs to spit up phlegm/mucus that is thick...

Hey everyone, I'm not sure if I have ever even posted on here before. With that being said, I'll just give a brief history of how ALS has made its way into my life. My mom met Randy, her Fiancee about 8 years ago after he moved from California to Georgia. He was extremely healthy, semi-pro at...

Can someone tell me the stages ALS patients go thru as their breathing deteriorates? Its been getting harder and harder for me to breathe over the years and I wonder if its time for me to get some help. I have sleep apnea but could never tolerate a cpap. My diaphram muscles feel so weak now...

When I got my Bipap in April, I was provided a face mask. It fits me well. But, when I go to bed at night I like to read and need reading glasses. Reading glasses and the full mask are uncomfortable. Plus if I want to have a drink of water or, as the wife puts it, "eat crackers in bed," I...

We finally made it back to Vanderbilt MDA/ALS Clinic this past week. So many health issues for me and my hubby, not to mention overwhelming financial issues, had kept us away since May 2011. It is a 7.5 hour ordeal for us. He was diagnosed at Vandy and we are comfortable there. Anyway, after...