coughing

  1. P

    Need advice

    My husband was diagnosed 3 weeks ago with ALS. He is declining very rapidly. Hospice is helping us. He is bedbound, unable to move any part of his body except his head. Urine is dark. They said his kidneys are the reason. Appetite is minimal. Speech is almost imperceptible. Coughing and...
  2. E

    Looking for input- is this ALS?

    Hi, Firstly my heart goes out to all those of you with ALS and your families. I have deep gratitude for the participants of this forum. This is the first time I’ve posted in a forum ever, but I am concerned and am looking for advice as to what is happening to me. First some background, I’m...
    • Erev
    • Thread
    • advice als als? arm coughing food foot headache heart is this als keyboard muscle pain pressure stiffness stress stroke swelling symptoms tests tongue tremor twitching vision weight loss wrong
    • Replies: 4
    • Forum: Could this be ALS?
  3. L

    Jevity via Feeding Tube

    My sister is having an issue with vomiting. I believe it begins with saliva pooling which caused coughing, then gagging which sometimes leads to vomiting (about 3 - 4 times a week). She is taking 2 cans of Jevity via feeding tube around 1 pm and then 1 or 2 cans in the evening around 6 pm. This...
  4. O

    I still don't really believe this diagnosis...

    (Still trying to learn how to move around this site, so I hope my comments are in the correct forum.) I want to say Hello and how much I appreciate the depth of knowledge and the forthrightness that I read posted here. My diagnosis was last October, 2017, after spending about 18 months chasing...
    • OutlanderALS
    • Thread
    • als atrophy brain breathing choking clinic coughing denial diagnosis emg foot hope medical movement mri pneumonia problem swallowing symptoms tests weakness
    • Replies: 14
    • Forum: Newly diagnosed
  5. T

    I need to know the signs

    My sister was diagnosed with ALS 4/2015. She is at the end and I need to know the signs and what to look for. I need to know how much more time I have left with her. She is currently on a bipap machine, she cannot breath on her own anymore. That has been since August 2017. Monday her chest was...
    • tiabye
    • Thread
    • als bipap communication coughing diagnosed end of life eyes frustrated life night respiratory signs of death
    • Replies: 13
    • Forum: Current caregivers
  6. M

    My father

    My father passed away last Wednesday surrounded by his family. Despite all the misery that ALS inflicted on his body, his last few days were very peaceful. His condition took a drastic downturn in November, after a couple of cycles on Edaravone. We will never know if this was a cause of his...
    • Miav123
    • Thread
    • als bed bipap christmas coughing dad decline edaravone family father feeding fell questions support transfers walker wheelchair
    • Replies: 15
    • Forum: In memory of
  7. A

    coughing constantly

    started yesterday afternoon And causes hours long choking episodes no fever but my family has had bad colds feels like annoying nasal drip but can't cough it up even with cough assist and suction bipap air blowing down my throat is causing more violent episodes don't think it's sickness...
  8. J

    Another "Bulbar ALS?" Thread

    Dear all, Thanks to a wonderfully useful website to those who are affected by this horrendous disease. I do wonder if anyone who has been diagnosed with ALS has had the following course of events which I'm currently going through. My current situation is as follows: I am a 29 year old male who...
    • Jaycee
    • Thread
    • als als? back breathing bulbar bulbar als christmas coughing diagnosed early fasciculation ice improvement last days life lift lump neurology saliva speech swallowing tongue weakness website
    • Replies: 15
    • Forum: Could this be ALS?
  9. worrieddaughter77

    beginning of respiratory failure?

    I can't handle it... My dad has been coughing for about 2 weeks now. He starts at about 7pm and it continues on until about 2am. It's so difficult for him and the rest of us to sleep. And I just don't know what to do!!! It seems that the reason for his cough is a partial collapse of his left...
  10. tripete

    Things that you do not hear about ALS

    In June of 2016 I posted a thread about Pain in ALS and how the "experts" tell us that ALS, as defined by the dying/malfunctioning of our motor neurons, is not painful. As time has progressed I have found many other things that "they" tell us are not issues that are. Like Smell, Bathroom...
    • tripete
    • Thread
    • age als bipap breathing coughing cramping cramps diaphragm dying family fasciculations fatigue feeding fingers foot grace headaches muscle muscle pain muscle wasting pain phlegm sleep venting work
    • Replies: 47
    • Forum: General discussion about ALS/MND
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