canada

  1. C

    scared and need to vent.

    I have all the symptoms, increasingly bulbar to be specific. I have been in and out of the hospital the past couple of weeks, I have the follow-up appointment with Neuro on Wednesday. The first time he saw me he took ten minutes and then told me it was probably stress. I know why its because I...
    • CPark
    • Thread
    • als back bulbar canada cramping cry diagnosis family fasciculations female hope iron lump pressure scared sleep stress stupid support swallowing swallowing issues symptoms twitches vent website wrong
    • Replies: 17
    • Forum: Could this be ALS?
  2. L

    Help please on sourcing Nuedexta in Canada

    Hello everyone, I'm new to the forum. My dad has just been diagnosed with ALS, and likely a few years into this devastating disease. Can anyone point me in the direction of how I can obtain the medication Nuedexta? We live in Toronto Canada. He has bulbar onset and saliva and speech is a big...
    • LizE
    • Thread
    • als bulbar bulbar onset canada dad diagnosed nuedexta onset saliva speech
    • Replies: 11
    • Forum: Current caregivers
  3. K

    Looking for Carony System

    Im looking to purchase a Bruno Carony System (discontinued) OR the newer Carony Go or Classic by Autoadapt. Im located in Canada and will pay shipping fees.
  4. KimT

    Aciphex no longer available

    I've been taking Aciphex for 20 years. About five years ago, none of the insurance companies would pay for it and I started buying it for cash in Canada through their wonderful online pharmacy. The pharmacists there were wonderful and send me e-mail reminders when my prescription was due...
    • KimT
    • Thread
    • back canada cost drugs ice insurance medicare meds online pharmacy
    • Replies: 17
    • Forum: Rants and raves
  5. I

    News! Edaravone in Canada

    Heard from Sunnybrook Hospital (Toronto) today. Person indicated that it looked like Edaravone would be approved in Canada for August/September. That's big news. Have nothing to substantiate other than her word.
  6. jethro

    Now, after all, can I bring my cause of ALS?

    hi, since i am diagnosed, i sit at home, go to gym/spa, like i used to do in past 20 years learning about als, read pubmed, alsuntangled... i am not eligible for nurown trial. i am not usa/canada resident, im 50 y old, 210 pounds weight for last 10 years (i felt and i had left elbow luxation...
    • jethro
    • Thread
    • als als? brain canada clinical data diagnosed diet eye foot heart hours kids love medical mri muscles nurown rilutek symptoms test trial usa wheelchair
    • Replies: 7
    • Forum: General discussion about ALS/MND
  7. V

    Getting diagnosed in Canada

    According to my neurologist I have neurological disease. I have had an MRI which ruled out MS but I need NCS and AMG testing before he can decide if it is ALS or something else unpleasant. The problem is that the wait time for testing is 7 months. I could go over the border to WA State but...
    • vanclumbers
    • Thread
    • als canada diagnosed diagnosis getting a diagnosis money mri neurologist problem testing
    • Replies: 10
    • Forum: Could this be ALS?
  8. Tedstehr

    Luck

    A lot of us feel we have Awful Luck Syndrome. But this recently dawned on me. In our universe, there is an infinite area of absolute cold and darkness, unable to support life. Then there is a much smaller area that has heat so high that it would kill any life. And then there is our planet, that...
  9. L

    New article on Pimozide

    Another article on Pimozide. Clinical trials in Calgary. I tried to find the old thread without luck. ALS patients take anti-psychotic drug in clinical trial led by Calgary researcher - Calgary - CBC News
  10. J

    Looking for anyone who remembers my mom on this forum

    I found this forum and have hopes that perhaps my mom was active on it during her final months. First off, I want to say that this post is in memory of my mom, Jacquie, who as diagnosed with ALS in May 2016 and passed away on January 26, 2017. I am searching the forums here but have no idea...
    • JacquiesDaughter
    • Thread
    • als bulbar bulbar als canada diagnosed family hearing heart life reading speech voice
    • Replies: 1
    • Forum: In memory of
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