cals

Hi all, This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category. My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...

Just wondering what others do when a limb/body part that you can't move much (or at all) falls asleep. Right now I'm thinking of my hand, which I previously would have opened and closed, wiggled fingers, and shaken out until the pins and needles went away. Right now I can only clumsily, slowly...

Hi Everyone, I know its been awhile since I have posted. I just felt that today was right. The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever...

ALSONE is a designated charity for 2019. This means they have a certain number of entries for their team that do not need to be BAA qualified. If any CALS or friends are interested in running and fundraising contact ALSONE I always wanted to run Boston!

After reading a few threads about the Vancouver ALS Clinic I spoke to the main contact there about "Giving Hope without False Hope." I sent a follow up email listing some things like the supplement list Sunnybrook gives out (thank you Al!) so people can feel they are doing something. I am...

Has anyone out there ever heard of a cooperative living arrangement for PALS? I’m dreaming of a community setting (small group home?) that encourages the involvement of CALS (+ family/friends) but with considerable relief for CALS from the 24/7 commitment. Also the mutually supportive...

Hello, I’ve been looking for a part of the forum where I could safely post, I didn’t want to intrude on any of the threads which appear for PALS or CALS only. It was really just to say that I live only a short distance from the SECC where the above titles conference is taking place in...

Limb onset with possible breathing problem? my Dad had a hard night last night. He explained it to me as he woke up with twitching in his rib cage and back and shortly after had shortness of breathe. He says he feels today like it’s hard to take a full deep breathe. A side note is that...

Dear forum friends, after a mostly good year, a couple of harder months and a final night with lots of music and holding hands my PALS peacefully fell asleep and never woke up again. In the 13 month after diagnosis he lost a lot, his work (never missed), his ability to move (accepted with...

My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...