cals

  1. KimT

    Hemorrhoid Banding Procedure - CALS/PALS

    OK, This has been going on for over a year and I vowed to take care of my teeth first, then PT for my knee and torn rotator cuff. Has anyone had experience with removing internal hemorrhoids via banding them off and letting them die and fall off? It doesn't matter if you're a PALS or CALS. I...
  2. Kristina1

    disagreement with my husband/cals about end of life decisions

    This is mainly a vent.. We are still working on discussions for writing up an advanced directive. My doctor is referring us to a palliative care doctor to help facilitate those discussions and make final decisions. While talking about this I told my husband when the time comes I DO want a...
  3. C

    Mood changes

    Hi all, This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category. My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
    • Cristin P
    • Thread
    • arm cals cbd death depressed diagnosis early family life mnd neurologist newly diagnosed nurown oil physical therapy progression rilutek second opinion support tests thc trial update wanted weakness worried
    • Replies: 11
    • Forum: Current caregivers
  4. Kristina1

    when a limb falls asleep

    Just wondering what others do when a limb/body part that you can't move much (or at all) falls asleep. Right now I'm thinking of my hand, which I previously would have opened and closed, wiggled fingers, and shaken out until the pins and needles went away. Right now I can only clumsily, slowly...
  5. scaredwifetx

    Steve's battle will be ending the next few days

    Hi Everyone, I know its been awhile since I have posted. I just felt that today was right. The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever...
  6. Nikki J

    Boston Marathon

    ALSONE is a designated charity for 2019. This means they have a certain number of entries for their team that do not need to be BAA qualified. If any CALS or friends are interested in running and fundraising contact ALSONE I always wanted to run Boston!
  7. Tedstehr

    Hope without false hope

    After reading a few threads about the Vancouver ALS Clinic I spoke to the main contact there about "Giving Hope without False Hope." I sent a follow up email listing some things like the supplement list Sunnybrook gives out (thank you Al!) so people can feel they are doing something. I am...
  8. D

    Question for experienced PALS and CALS

    Has anyone out there ever heard of a cooperative living arrangement for PALS? I’m dreaming of a community setting (small group home?) that encourages the involvement of CALS (+ family/friends) but with considerable relief for CALS from the 24/7 commitment. Also the mutually supportive...
  9. N

    MND conference - Glasgow December 7-9

    Hello, I’ve been looking for a part of the forum where I could safely post, I didn’t want to intrude on any of the threads which appear for PALS or CALS only. It was really just to say that I live only a short distance from the SECC where the above titles conference is taking place in...
    • Neil1689
    • Thread
    • cals conference mnd support wanted
    • Replies: 3
    • Forum: New members
  10. C

    Limp onset with possible breathing problem?

    Limb onset with possible breathing problem? my Dad had a hard night last night. He explained it to me as he woke up with twitching in his rib cage and back and shortly after had shortness of breathe. He says he feels today like it’s hard to take a full deep breathe. A side note is that...
    • Cherise77
    • Thread
    • back breathing breathing problems bulbar cals cbd dad night oil onset problem problems swallowing symptoms symptoms? trial twitching
    • Replies: 12
    • Forum: General discussion about ALS/MND
Back
Top